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Susannah Fox

I help people navigate health and technology.

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Archives for November 2013

Engage With Grace

November 27, 2013 By Susannah Fox 1 Comment

This Thanksgiving, I am hosting the guest post below, participating in the annual Engage With Grace blog rally, to encourage those who haven’t considered their end-of-life preferences start thinking about them, and asking those who have done it to consider how their decisions may have changed over time. It’s good food for thought. Wishing you […]

Filed Under: e-pts resources, end of life Tagged With: Engage with Grace

A field guide to The Diagnosis Difference

November 26, 2013 By Susannah Fox 67 Comments

The Pew Research Center released a report today on people living with chronic conditions: The Diagnosis Difference. Policy makers, patient advocates, entrepreneurs, investors, clinicians — all health care stakeholders — can use the data to map the current landscape. There are still barren patches, where people remain offline and cut off from the resources and […]

Filed Under: demographics, trends & principles Tagged With: california healthcare foundation, cancer, diabetes, epilepsy, fibromyalgia, Heart Conditions, High Blood Pressure, Lung Conditions, Pew Research Center, Rare Disease, rheumatoid arthritis

Patients included

November 21, 2013 By Susannah Fox 53 Comments

Patients Included

I recently received an invitation to speak at a conference and quickly ran it through my standard criteria. It met 4 of the 5 — pretty impressive — so I agreed to a phone call with the organizers. They let me know right away that they are open to collaboration and suggestions, so I brought […]

Filed Under: positive patterns Tagged With: california healthcare foundation, patients included, Stanford Medicine X

“What drugs is mom on?”

November 19, 2013 By Susannah Fox 1 Comment

Here are quotes from two excellent essays about being an empowered caregiver. First, from Muriel Gillick, MD: In those care planning meetings in the nursing home, if they ask nothing else, family members should ask “what drugs is mom on?” And that should be followed by “why is she on them?” and “are they helping?” […]

Filed Under: end of life, shared decision making Tagged With: Anna Quindlen, caregivers, drugs, Muriel Gillick

Mobile, social, health, care

November 15, 2013 By Susannah Fox 33 Comments

Two people holding hands at the mouth of a tunnel. Uploaded by Adam Foster on flickr

A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your meds is essential to maintaining your health when you live with a chronic condition. People know this, but they need help doing it. […]

Filed Under: peer-to-peer health care, positive patterns, trends & principles Tagged With: diabetes, epilepsy, HIV/AIDS, Kenya, mhealth summit, mobile, patientslikeme, peer-to-peer healthcare, Project HealthDesign, QuitNet, smoking cessation, SMS

Is there a generational tech divide in medicine? And is that the main problem?

November 11, 2013 By Susannah Fox 19 Comments

Jay Parkinson recently wrote a post responding to a question raised by Atul Gawande: Can technology be a change agent for health care? Jay’s answer focused on the generational tech divide in medicine today. One quote: “Many of the most influential doctors practicing medicine today have an antagonistic relationship with computers. Change will only come in […]

Filed Under: demographics, hc's problem list, net-friendly docs Tagged With: Atul Gawande, family, Jay Parkinson, Manhattan Research, Pew Research Center, Rosalie Yerkes Figge

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
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