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Susannah Fox

I help people navigate health and technology.

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    • Digital Health Practices Among Teens and Young Adults: Key Findings
    • Fact sheet: differences between young women and young men in their use of social media, online health resources
    • Fact sheet: teens and young adults, social media, online health resources
    • How Young People Use Digital Media to Manage Their Health
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Recent Posts:

  • Rare Disease in the NYT
  • Hack needed: Peer connection
  • Wow! How? Patient-Led Research Scorecards
  • Wow! How? “Breaking Brad”
  • Rare Disease in the U.S. 2025
  • The Black Panther Party’s Health Innovations
  • Rebel Health on The Nocturnists
  • Wow! How? Visualizing Self Care
  • Wow! How? Patient-led Design
  • Wow! How? Dr. ChatGPT
  • Wow! How? Social Support Matters
  • Wow! How? Food Equality
  • Find a bit of beauty in the world today
  • Case study: Recurrent fever
  • Wow! How? In-your-face Expertise
  • Wow! How? Patient Memoirs
  • Wow! How? Peer Support for Queer Youth
  • Wow! How? Patient-led Biodesign
  • Wow! How? Obesity Treatment
  • Wow! How? Learning Health Networks
  • Wow! How? For Love & Life
  • Public Q&A: My 5 favorite books on how to defend yourself against the U.S. health care system
  • Wow! How? Mystery vs. Moms
  • Discovery Diaries with Damon Davis
  • Covid and the Future of Health
  • Wow! How? Peer Warmline
  • Q&A with Deborah Kalb
  • Wow! How? Hope for Henry
  • The Other 80
  • Wow! How? PEARS
  • Rebel Health Audiobook
  • Wow! How? Community as therapy
  • Rebel Health in the News
  • Public Q&A: “I received scary test results. What questions should I ask my clinician?”
  • Wow! How? Dr. Reddit
  • Wow! How? Eating disorder recovery
  • Wow! How? Hospital Alarms
  • Rebel Health
  • Wow! How? Patient Data Rights
  • Wow! How? Community Consults
  • Wow! How? Moebius Syndrome
  • Public Q&A: Rare Disease and Rebel Health
  • Wow! How? Patient-Led Research
  • Wow! How? Peer Support
  • Books I read while writing Rebel Health
  • Wow! How? Gleevec
  • Wow! How? Ring Theory
  • Wow! How? End of life
  • Engage with Grace
  • Wow! How? False Boundaries
  • Wow! How? Public Access to Research
  • Wow! How? Drug Interactions
  • Wow! How? Diagnosis
  • Wow! How? Home inventors
  • Transforming research participation
  • Wow! How? Health
  • Cover reveal
  • Pre-order Rebel Health
  • I’ve got something to say
  • Rebel Health
  • A survey about clinical trial support groups
  • Caregiver starter pack
  • The Promise of Patient-Led Research Integration
  • Public Q&A: Human-centered design
  • Public Q&A: Impact review
  • The Next Big Thing in Health
  • Engage with Grace
  • Patient-led innovation
  • Champions fast-track innovations
  • Solvers attack problems
  • Networkers pool resources
  • Seekers go out on the hunt
  • Too legit to quit
  • Caregiving is not a “career break”
  • Designing Peer-to-peer Health
  • Case study: Injection tips
  • What can we do by Tuesday?
  • Case study: Trevor’s disease
  • Lisa Suennen adds a dash of salt
  • Whose needs are not met?
  • Should peer health community moderators get paid?
  • Celebrating #BCSM as a peer health innovation
  • Consumer-strength tools, industrial-strength innovation
  • Peer health playbooks
  • Doing the work
  • Inventing the future
  • Data-driven support for vulnerable populations
  • A futurist’s perspective on LongCovid
  • LGBTQ+ youth are reaching out for help
  • Depression, social media use, and digital health
  • Coping with COVID-19
  • From stunt to solution
  • Standing ovation… then crickets
  • The Data Puzzle of Our Time
  • “I’ve been there, let’s change things” innovation
  • LongCovid’s citizen scientists
  • Crazy, crazy, LongCovid, obvious
  • HealthChangers: Mark Ganz
  • Case study: Breast cancer
  • What if we had people’s trust?

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Topics

  • Seekers
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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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