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Susannah Fox

I help people navigate health and technology.

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policy issues

Flashback: Announcing the Invent Health Initiative

March 8, 2018 By Susannah Fox 2 Comments

Make Things, above a drawing of a woman holding tools

I recently signed on as an advisor to a group of George Washington University students who are organizing a medical and assistive device hackathon on March 24-25, 2018, in downtown DC. Check it out if you live nearby! In pulling together resources for them, I found the memo I sent to senior leaders across the Department […]

Filed Under: key people, policy issues Tagged With: assistive devices, Hhs, home health care hacks, Invent Health, NIH

Unrest

January 8, 2018 By Susannah Fox 1 Comment

Jennifer Brea, director of the film Unrest, lies in bed with EEG leads on her head

The film “Unrest” will debut on Independent Lens this week (check your local listings — in the DC area it will air on Jan. 12 at 10:30pm on WETA). I couldn’t wait and bought my own digital copy on Amazon. Let me just say: It’s no surprise that it’s on the short list for an Academy […]

Filed Under: e-patient stories, key people, patient networks, peer-to-peer health care, policy issues Tagged With: chronic fatigue syndrome, Jennifer Brea, Marfan syndrome, ME/CFS, myalgic encephalomyelitis, peer-to-peer healthcare, Rare Disease, rare diseases

Access to results that matter

October 26, 2017 By Susannah Fox 16 Comments

Painting of people climbing cell structures

The Patient-Centered Outcomes Research Institute (PCORI) will kick off their annual meeting on Tuesday, October 31. I will moderate the first panel, “Access to Results That Matter,” and, as I like to do, I’m starting the conversation early online. Here’s the session description: Traditional health research often does not provide the answers to patients’ questions […]

Filed Under: health data, participatory research, policy issues, research issues Tagged With: Ben Goldacre, Bishop Simon Gordon, David Lansky, Diane Padden, flip teaching, Freddie White-Johnson, PCORI, Regina Holliday, Sharon Terry, Stephanie Buxhoeveden

Access to data = access to power

October 19, 2017 By Susannah Fox 17 Comments

Black Lives Matter sign

Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]

Filed Under: health data, policy issues, trends & principles Tagged With: Adverse Childhood Experience, asthma, Black Lives Matter, Blue Button, FHIR, flip teaching, Health Data, health disparities

Creating space for innovation

October 8, 2017 By Susannah Fox 3 Comments

Stanford Medicine X stage

It seems like forever-ago that I delivered this keynote at Stanford Medicine X. Innovators are facing even more significant challenges than I could have imagined back in September 2016. And yet I still believe we live in a time of abundant opportunity to connect with people who want to work toward a participatory, innovative future […]

Filed Under: peer-to-peer health care, policy issues Tagged With: home health care hacks, maker movement, peer-to-peer healthcare, Stanford Medicine X

Aging, housing, health

September 12, 2017 By Susannah Fox 2 Comments

Early 20th century typewriter keys

Brandeis University hosted a one-day symposium on aging, housing, health, technology, and other issues. Thanks to the people who captured these insights!

Filed Under: demographics, policy issues, trends & principles Tagged With: Alan Kay, Alexandre Kalache, Atlas of Caregiving, Brandeis University, caregivers, Danny Sands, Leslie Kernisan, Muriel Gillick, Pamela Ressler, Pippa Shulman, Rosalie Yerkes Figge, Ruth Finkelstein

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Topics

  • Beauty and Wonder
  • Demographics
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