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Susannah Fox

I help people navigate health and technology.

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peer-to-peer healthcare

Pandemic problem-solving

April 29, 2020 By Susannah Fox 9 Comments

Hands feed fabric into a sewing machine

The COVID19 pandemic is forcing everyone to learn new skills on the fly.  Clinicians are teaching each other how to hotwire a ventilator to serve more than one patient.  People are 3D printing spare parts for medical equipment and learning how to sew protective masks. Parents are sharing strategies for convincing their teenagers to stay home – and […]

Filed Under: peer-to-peer health care Tagged With: COVID19, maker movement, peer-to-peer healthcare

Public Q&A: Peer support for parents of teens with cancer

February 24, 2020 By Susannah Fox 9 Comments

Peer to peer health advice: your community may really be your superpower

Helen Burstin, MD, reached out to ask if I know of an online peer-to-peer support group for parents of teens with cancer. For anyone who knows Helen: Don’t worry, it’s not for her own family. She is asking on behalf of a friend, who writes: “I’ve been able to find groups for parents of children […]

Filed Under: peer-to-peer health care, public Q&A Tagged With: cancer, caregivers, family, parents, peer-to-peer healthcare, teens

What if your clinician gave you a prescription to check out a patient group that they knew to be good?

February 12, 2020 By Susannah Fox 44 Comments

Post-it notes fill one section of a diagram

Amy Gleason (@ThePatientsSide) captured this line of mine, delivered on a panel at the Health Datapalooza yesterday. Her tweet generated an interesting cascade of reactions ranging from: “This is potentially dangerous” to “This is obvious (and old news).” I thought I’d expand on my observations and see if people want to expand on theirs in […]

Filed Under: patient networks, peer-to-peer health care, public Q&A Tagged With: ACOR, Bon Ku, Danny Sands, David Fajgenbaum, E-Patient Dave, Health Datapalooza, peer-to-peer healthcare

Crowd-diagnosing STDs on Reddit

January 27, 2020 By Susannah Fox 20 Comments

Questions marks painted on pavement

Reddit is a massive Petri dish of human conversation, rife with peer-to-peer health encounters, so I was thrilled when Jane Sarasohn-Kahn alerted me to this article: “People Are Flocking to the Internet to Crowdsource Their STD Diagnosis—Yes, Really.” It focuses on a subreddit (aka online community) devoted to sexually-transmitted diseases (STDs). Kudos to Parade for […]

Filed Under: peer-to-peer health care Tagged With: jama, peer-to-peer healthcare, sexual health, STIs

Mystery solved. Again.

January 7, 2020 By Susannah Fox 13 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

Friends, I have yet another so-extraordinary-it’s-ordinary story of peer-to-peer health care to share. Andrew Wilkinson wrote on Twitter: A few months ago, as a last ditch effort, I posted on Twitter about the horrible acid reflux which I’d been suffering from for almost 10 years. I had tried just about everything. Proton pump inhibitors, dietary […]

Filed Under: Networkers, peer-to-peer health care, Seekers, social media Tagged With: peer-to-peer healthcare, Twitter

Assessing the quality of peer health advice

August 12, 2019 By Susannah Fox 37 Comments

Trust

“Can you really trust what you read online?” is a frequent (and valid) question about online health information, particularly peer to peer advice. People who are part of healthy peer communities sometimes scoff at the question since they see so much good coming from the opportunity to connect and share information. But how might we […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Information Quality, John Grohol, peer-to-peer healthcare, Trustworthiness

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11
  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

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