– Kristen Cerabona, mother of a girl living with CLOVES Syndrome, writing about what it’s like to be a “marathon parent.”
caregivers
Examples, please: peer-to-peer healthcare
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with […]
A Health Information Divide
This post is first and foremost a thank-you note. Thank you to everyone who posted a comment, emailed me, or tweeted a suggestion in response to my request for input last July: Crowdsourcing a Survey. Six new topics came directly from those conversations. Thank you to Veenu Aulakh and the California HealthCare Foundation who provided […]
Visiting hours
An article in a recent issue of the British Medical Journal traces the history of visiting patients in hospitals in England, from the 18th century to the present. Sadia Ismail and Graham Mulley paint quite a picture in their opening lines: From 2 pm they gather at the entrance to the ward, occasionally drifting through […]
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