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Susannah Fox

I help people navigate health and technology.

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policy issues

Access to results that matter

October 26, 2017 By Susannah Fox 16 Comments

Painting of people climbing cell structures

The Patient-Centered Outcomes Research Institute (PCORI) will kick off their annual meeting on Tuesday, October 31. I will moderate the first panel, “Access to Results That Matter,” and, as I like to do, I’m starting the conversation early online. Here’s the session description: Traditional health research often does not provide the answers to patients’ questions […]

Filed Under: health data, participatory research, policy issues, research issues Tagged With: Ben Goldacre, Bishop Simon Gordon, David Lansky, Diane Padden, flip teaching, Freddie White-Johnson, PCORI, Regina Holliday, Sharon Terry, Stephanie Buxhoeveden

Access to data = access to power

October 19, 2017 By Susannah Fox 17 Comments

Black Lives Matter sign

Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]

Filed Under: health data, policy issues, trends & principles Tagged With: Adverse Childhood Experience, asthma, Black Lives Matter, Blue Button, FHIR, flip teaching, Health Data, health disparities

Creating space for innovation

October 8, 2017 By Susannah Fox 3 Comments

Stanford Medicine X stage

It seems like forever-ago that I delivered this keynote at Stanford Medicine X. Innovators are facing even more significant challenges than I could have imagined back in September 2016. And yet I still believe we live in a time of abundant opportunity to connect with people who want to work toward a participatory, innovative future […]

Filed Under: peer-to-peer health care, policy issues Tagged With: home health care hacks, maker movement, peer-to-peer healthcare, Stanford Medicine X

Aging, housing, health

September 12, 2017 By Susannah Fox 2 Comments

Early 20th century typewriter keys

Brandeis University hosted a one-day symposium on aging, housing, health, technology, and other issues. Thanks to the people who captured these insights!

Filed Under: demographics, policy issues, trends & principles Tagged With: Alan Kay, Alexandre Kalache, Atlas of Caregiving, Brandeis University, caregivers, Danny Sands, Leslie Kernisan, Muriel Gillick, Pamela Ressler, Pippa Shulman, Rosalie Yerkes Figge, Ruth Finkelstein

Invent Health

November 27, 2016 By Susannah Fox 2 Comments

As winter sets in here in DC, I’m warming up with memories of September’s Stanford Medicine X conference. I loved putting together a keynote that highlighted how the maker movement intersects with the e-patient movement — and how private sector and government leaders can benefit. This intersection, and the lessons we are learning from it, are the latest examples […]

Filed Under: peer-to-peer health care, policy issues Tagged With: Hhs, home health care hacks, Invent Health, Stanford Medicine X

The sky is now her limit

November 5, 2016 By Susannah Fox 4 Comments

Drawing of a milkmaid standing at the bottom of a ladder with titles of professions on each rung. At the top: presidency.

Check out this gem of a postcard from 1920, entitled: The sky is now her limit. The detail I wish was true: that we had achieved wage equality before women gained political appointments. What is true:  The ratio of female notaries to males is 3 to 1 in some states. And yes, if you can’t read […]

Filed Under: beauty and wonder, policy issues

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