Maneesh Juneja is a dynamic person, both in person and online, and I’m proud to call him a friend and community colleague. Unfortunately, he has been living with LongCovid, the long-term effects of the COVID-19 virus, for nearly 12 months. If you have not yet watched his recent Health Datapalooza keynote, now is your chance: […]
peer-to-peer health care
Coping with COVID-19
I am thrilled to share that my research partners and I will release a new survey report on March 17: Coping with COVID-19: How Young People Use Digital Media to Manage Their Mental Health. In 2018, Vicky Rideout and I collected data and stories from a nationally-representative sample of 14- to 22-year-olds, many of whom […]
“I’ve been there, let’s change things” innovation
My mission is to boost the signal for peer health advice at every level of our health care system. Today I am thrilled to share that Equip, one of the peer-powered startups I advise, has closed $13 million in Series A financing, spurring it toward the transformation of eating disorder treatment. Kristina Saffran, CEO of Equip, recovered […]
LongCovid’s citizen scientists
Amy Dockser Marcus writes with the sensitivity and precision of a scientist, which is why I was thrilled that she recently turned her attention to the patient-led research being conducted by people with LongCovid, which affects an estimated 10-20% of COVID-19 patients. The Wall Street Journal‘s pay wall may prevent you from reading the full […]
Crazy, crazy, LongCovid, obvious
LongCovid is an extraordinary challenge to the human body. It’s been met with an extraordinary response from the human spirit. As I wrote in a previous post, we are watching patients, caregivers, clinicians, researchers, and policymakers move through the stages of peer-to-peer health innovation at a fast clip. Faster than I’ve ever seen in my […]
Case study: Breast cancer
When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us. That is the case with my friend Meagan. She was recently diagnosed with breast cancer. She […]
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