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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Just-in-time help

April 18, 2014 By Susannah Fox 3 Comments

One man helping another with his tie on the T by jsperber

Jodi Sperber snapped this photo of an older man helping a younger man with his tie on the T in Boston. I love it and shared it online (after getting Jodi’s permission). Roni Zeiger was one friend I sent it to and he replied, “Networks of microexperts ready to help each other: you never know where […]

Filed Under: beauty and wonder, peer-to-peer health care, social media Tagged With: altruism, Jodi Sperber, microexperts, Unmentionables

Secret questions, naked truths

April 6, 2014 By Susannah Fox 4 Comments

Google Poetics: I don't know how to...

My prepared remarks for the Quantified Self Public Health Symposium (here are some notes from the event): You know when you type the first few words of a query and Google suggests the rest based on what thousands of other people have typed next? There’s a Twitter account called Google Poetics that takes those suggested phrases […]

Filed Under: demographics, key people, pt/doc co-care, research issues Tagged With: california healthcare foundation, caregivers, chronic disease, Chronic Diseases, diabetes, Google Poetics, Kim Vlasic, Pew Research Center, QSPH, Quantified Self, tracking, Tracking for Health

Quantified Self Public Health Symposium

April 6, 2014 By Susannah Fox 13 Comments

Health Patch from Vital Connect

On April 3, I was part of  a symposium organized by Bryan Sivak, CTO, U.S. Department of Health and Human Services; Larry Smarr, Director, Calit2; and Gary Wolf, Director, Quantified Self Labs, where I presented the Pew Research Center’s findings on tracking for health. I uploaded my remarks in a separate post — this one is more of a “notes […]

Filed Under: key people, participatory research, pt/doc co-care, pts as teachers, research issues Tagged With: Gary Wolf, Pew Research Center, public service, QSPH, Quantified Self

Every-day magic

March 27, 2014 By Susannah Fox 16 Comments

I’ve been following Bertrand Might’s story for a few years through his parents’ blog about his “movement disorder” (which turns out to be related to his incredibly rare condition, NGLY1 deficiency). Last week, Matthew Might co-authored a commentary with Matt Wilsey in the journal of the American College of Medical Genetics and Genomics: “The shifting model […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: Matt Might, peer-to-peer healthcare, Rare Disease

The goal posts of life

March 22, 2014 By Susannah Fox 10 Comments

Earlier this week, John Sharp tweeted a link to a New York Times column by Abigail Zuger, MD, about the “Unworried Unwell” — people who have been told that they are very ill, but do not seem to want to do anything about it. The comments are wonderful, particularly the Reader’s Picks, including helpful tips about […]

Filed Under: ethics, hc's problem list Tagged With: #whatifhc, Abbe Don, california healthcare foundation, Health Foo, On Purpose, stroke

3 home health care hacks

March 20, 2014 By Susannah Fox 49 Comments

Two sets of hands sort pills into a pillbox

I recently spent an afternoon with a dear relative who is being treated for cancer. Her medication regimen is so complicated that my mom, an experienced caregiver, visits her daily to help sort all the different pills into all the various boxes (and make sure they get swallowed). They showed off three health care hacks […]

Filed Under: key people, peer-to-peer health care Tagged With: cancer, caregivers, home health care hacks

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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