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Susannah Fox

I help people navigate health and technology.

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peer-to-peer healthcare

Food Allergy 101: hold the blah-blah-blah

August 26, 2014 By Susannah Fox 23 Comments

Two Auvi-Q epinephrine injectors - photo by Susannah Fox

UPDATE: FARE has created an excellent 15-minute online class: How to Save a Life: Recognizing and Responding to Anaphylaxis Original post: In a fit of housecleaning last spring, I recycled all my old food-allergy training files since they were 5+ years old. I figured it wouldn’t be very hard to find a good one-pager on […]

Filed Under: peer-to-peer health care, pts as teachers Tagged With: food allergy, peer-to-peer healthcare

“One person’s TMI is another person’s need-to-know.”

August 25, 2014 By Susannah Fox 15 Comments

too much information by mkorsakov on Flickr

– Meredith Gould, aptly summarizing a key discussion point for our upcoming panel, “Communicating the experience of illness in the digital age.” (TMI stands for “too much information.”) We are flipping the panel, posting ideas and sparking conversations in advance so that when we arrive at Stanford Medicine X, the on-stage event will be one more […]

Filed Under: end of life, patient networks, peer-to-peer health care Tagged With: #medxsm, Colleen Young, flip teaching, Meredith Gould, Pamela Ressler, peer-to-peer healthcare, Stanford Medicine X

Break my heart, make me change

August 1, 2014 By Susannah Fox 19 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

Take a deep breath and then look at this data about HIV in the U.S.: I have seen these numbers before, but never laid out so clearly and so beautifully. Thank you, Jeff Guo of the Washington Post, for breaking my heart. Thank you, because I think we all need our hearts broken anew from […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: #whatifhc, AIDS.gov, Bedsider, Black Lives Matter, HIV/AIDS, Kicesie Drew, peer-to-peer healthcare, Pew Research Center, Vic Strecher

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

The Vasa, which sank on its maiden voyage in 1628

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

Just in time someone like me

July 8, 2014 By Susannah Fox 12 Comments

Teens want just in time someone like me

In 2005, I took a call from someone who worked at Planned Parenthood. He wanted the conversation to be off the record, so I didn’t even write down his name, which is a shame because that conversation changed the direction of my career. The caller had seen media coverage of Pew Internet’s health research, probably […]

Filed Under: peer-to-peer health care Tagged With: peer-to-peer healthcare, Pew Internet, sexual health, Tom Ferguson

The internet spins both ways

June 18, 2014 By Susannah Fox 2 Comments

Did you know some doctors once had a hand signal to warn their colleagues about internet-using patients? I talk about this and other health care history, plus a bit about the possible future (including some market opportunities), in an interview with Alex Howard: One study I cite in this segment of our conversation centers on […]

Filed Under: patient networks, peer-to-peer health care, social media, trends & principles Tagged With: Alex Howard, Health Datapalooza, peer-to-peer healthcare, self-tracking, Tracking for Health

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Recent Comments

  • Lisa Suennen on Wow! How? Community: “That is a beautiful story. Kids always have the best answers” Aug 29, 11:31
  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45

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