Longtime readers will recognize this story, but I’m posting it again here–and on Medium–to honor Moebius Syndrome Awareness Day: When Burt Minow was born in 1922, his disability — partial hearing loss and complete facial paralysis—was immediately apparent. His mouth was frozen in a sort of frown, and he could not suck on a nipple to get […]
peer-to-peer healthcare
Up, up, and away
I’m experimenting with a new publishing platform: Medium. I’ll eventually post the entire essay here, but for now I’d love it if you would check out this story — and recommend it to others if you like it! What I learned going down an emergency slide
Food Allergy 101: hold the blah-blah-blah
UPDATE: FARE has created an excellent 15-minute online class: How to Save a Life: Recognizing and Responding to Anaphylaxis Original post: In a fit of housecleaning last spring, I recycled all my old food-allergy training files since they were 5+ years old. I figured it wouldn’t be very hard to find a good one-pager on […]
“One person’s TMI is another person’s need-to-know.”
– Meredith Gould, aptly summarizing a key discussion point for our upcoming panel, “Communicating the experience of illness in the digital age.” (TMI stands for “too much information.”) We are flipping the panel, posting ideas and sparking conversations in advance so that when we arrive at Stanford Medicine X, the on-stage event will be one more […]
Break my heart, make me change
Take a deep breath and then look at this data about HIV in the U.S.: I have seen these numbers before, but never laid out so clearly and so beautifully. Thank you, Jeff Guo of the Washington Post, for breaking my heart. Thank you, because I think we all need our hearts broken anew from […]
How did we get here? And where are we going?
Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]
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