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Susannah Fox

I help people navigate health and technology.

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peer-to-peer healthcare

The boy with a thorn in his joints (and the mom who turned over every rock)

February 6, 2013 By Susannah Fox 8 Comments

Questions marks painted on pavement

When I was writing the Pew Research report, “Peer-to-peer Healthcare,” I switched back and forth between numbers and stories, national survey data and notes from my fieldwork among people living with rare conditions. I learned to scan my spreadsheet of rare-disease respondents for women’s names since they seemed to stop at nothing to protect their […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: moms, New York Times, peer-to-peer healthcare, Rare Disease, rare diseases

On the internet, the expression of your spirit has nothing to do with the expression on your face.

July 19, 2012 By Susannah Fox Leave a Comment

– the line I added to my speech on the train up to Philadelphia last Saturday. I wanted to convey to the people attending the 2012 Moebius Syndrome Conference that I admire them and see them as pioneers of peer-to-peer health care. My full post is on e-patients.net: Health Care Hackers

Filed Under: patient networks Tagged With: Moebius Syndrome, peer-to-peer healthcare

Peer-to-peer health care in 5 minutes or less

June 26, 2012 By Susannah Fox 3 Comments

This is a highlight reel of my keynote at last year’s Medicine 2.0 conference. I’ll be speaking at Medicine 2.0 Boston on Sept. 15 to discuss patient-provider collaboration for patient safety.

Filed Under: patient networks, peer-to-peer health care, pt/doc co-care, trends & principles Tagged With: peer-to-peer healthcare

Peer-to-peer Healthcare at Medicine 2.0

September 23, 2011 By Susannah Fox 26 Comments

Painting of a woman and two children

This post was published in 2011 and the themes ring true today. Only the survey data is out of date. For updated technology adoption trends, follow @PewInternet or refer to their fact sheets. A 2018 national survey found that half of young adults seek peer health advice online.  I was honored to give the closing […]

Filed Under: general, peer-to-peer health care, trends & principles Tagged With: peer-to-peer healthcare, Pew Internet, Stanford Medicine X

Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious.

May 25, 2011 By Susannah Fox 103 Comments

Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize that knowledge to make it useful for as many people as possible. An idea whose time […]

Filed Under: participatory research, peer-to-peer health care, trends & principles Tagged With: altruism, Children's Hospital Boston, Ian Eslick, Kevin Kelly, MIT Media Lab, patientslikeme, peer-to-peer healthcare, Pew Internet, Quantified Self, TuDiabetes

PatientsLikeMe goes wide

April 11, 2011 By Susannah Fox 6 Comments

PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV, depression, epilepsy, fibromyalgia, multiple sclerosis and organ […]

Filed Under: found on the net, patient networks, peer-to-peer health care Tagged With: patientslikeme, peer-to-peer healthcare

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Recent Comments

  • Rajiv Mehta on Rebel Health: “Congratulations! A long time in the works, but you’ve learned so much more since you left Pew that will have…” Jun 2, 12:01
  • Richard Sass on Rebel Health: “I can hardly wait to include Rebel Health within the “WellBeing Collaborative” Origins mHealth is gestating. Perhaps Origins birth will…” Jun 2, 11:10
  • Susannah Fox on Rebel Health: “Ding Ding Ding! We have a winner!! Billy Idol reference #1 from my dear pal Bill. Knew I could count…” Jun 2, 10:23

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