A 2018 national survey by Hopelab and Well Being Trust uncovered an astonishing finding: Fully half (51%) of 18- to 22-year-olds say they have tried to find people online with health concerns similar to their own. That is double the percentage of teens (14- to 17-year-olds) who reported doing this activity and it’s much higher […]
HopeLab Foundation
Public Q&A: How to connect teens with health peers
In the spirit of Public Q&A, I am sharing a question I received from someone who helps run outreach and support programs for a disease-focused nonprofit: “In your research did you learn about what mode and types of connecting teens preferred? Did any teens express wishes for something online that they couldn’t find in terms of connecting with peers?” Essentially, […]
Helping people find the needle in a data haystack
One of the most important customer-service lessons I ever learned was from E-patient Dave: when it comes to disseminating research, give people what they need, not what you want to create. About a decade ago, Dave was on deadline to turn in slides for a presentation. He needed one key survey finding to illustrate a […]
Well/Connected
Dr. Joe Kvedar interviewed me for his podcast, Well/Connected, and I thought I’d share footnotes for all the resources I mentioned. Key findings from the national survey of 14- to 22-year-olds focused on digital health and social media use, sponsored by Hopelab and Well Being Trust, which took a special look at people living with […]
Get Social Health
Janet Kennedy recently hosted me on the Get Social Health podcast, which focuses on how social media is being used to help hospitals, clinicians, caregivers, and patients connect and engage. We discuss how Twitter hashtags can be like camp fires, where people gather to tell stories, and why I have empathy for people who don’t […]
The business case for paying attention to teens
Three blockbuster reports focused on teens and technology have come out recently: Teens, Social Media & Technology 2018, by Monica Anderson and Jingjing Jiang (Pew Research Center) Digital Health Practices, Social Media Use, and Mental Well-Being Among Teens and Young Adults in the U.S., by Victoria Rideout and Susannah Fox (Hopelab and Well Being Trust) […]
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