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Susannah Fox

I help people navigate health and technology.

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Blue Button

Data as an engine of disruption in health care

October 22, 2018 By Susannah Fox 32 Comments

Medical records closes at 5pm on Friday by Regina Holliday

Continuing my practice of “flipping” an event — posting what I hope to get across in advance in order to jump start the conversation — here is a preview for a panel set to take place on Oct. 23. My co-panelists (Iya Khalil, Deborah Kilpatrick, and Don Rucker) and I will talk about data as an engine […]

Filed Under: health data, medical records, policy issues Tagged With: Anil Sethi, Blue Button, Deborah Kilpatrick, Deven McGraw, Don Rucker, EHR, electronic medical record, FasterCures, flip teaching, Harlan Krumholz, Hugo Campos, Iya Khalil, Lisa Bari, Lucia Savage, Milken Institute, Open Notes

Blue Button’s North Star

August 23, 2018 By Susannah Fox Leave a Comment

Red Stop sign with stickers, so it reads: DON'T STOP BELIEVING

Blue Button is a Trojan horse for culture change in the American health care system. It places power in the hands of patients and whets the data appetites of millions of Americans and the companies who would like to serve them. If you’ve never heard of Blue Button, here’s a quick overview: The federal government […]

Filed Under: health data, medical records, policy issues, positive patterns Tagged With: Blue Button, FHIR, Hhs, Mark Scrimshire, Markle Foundation, Medicare, VA, veterans, White House

A health & technology pioneer learns that joy, even in illness, doesn’t have an age limit

August 13, 2018 By Susannah Fox 10 Comments

Woman holds her hands in the shape of a heart

The following is a cross-post from the Atlas of Caregiving blog, which is featuring a new series of “caring conversations” with people who connect their professional experience to their caregiving experience. Susannah Fox advises companies and nonprofits on how to navigate the intersection of health and technology. She recently served as the Chief Technology Officer […]

Filed Under: e-patient stories, key people Tagged With: Atlas of Caregiving, Blue Button, caregivers, Family Caregivers, Hope for Henry, Laurie Strongin

Access to data = access to power

October 19, 2017 By Susannah Fox 17 Comments

Black Lives Matter sign

Data about your health and that of your community can empower you to make — or demand — changes. When there are gaps in the record or the data don’t exist, participatory data collection empowers people to contribute to the public conversation. Access to data is access to power. On November 17-19, 2017, Data for […]

Filed Under: health data, policy issues, trends & principles Tagged With: Adverse Childhood Experience, asthma, Black Lives Matter, Blue Button, FHIR, flip teaching, Health Data, health disparities

The White House Conference on Aging

July 12, 2015 By Susannah Fox 12 Comments

Lawn sign in front of the White House announcing the Conference on Aging July 13

The White House Conference on Aging only happens once every ten years — and it’s happening tomorrow. The program begins at 10 a.m. ET on Monday, July 13, and will be livestreamed: https://www.whitehouse.gov/live I’ll be on a panel in the late afternoon talking about technology and the future of aging, directly after Tim Brown and Barbara Beskind discuss […]

Filed Under: demographics, key people, medical records Tagged With: Blue Button, Hhs, home health care hacks, maker movement, Medicare, Rosalie Yerkes Figge, usability, White House, White House Conference on Aging

Health data’s adolescence

March 5, 2014 By Susannah Fox 8 Comments

I wrote a guest post for the Health Data Consortium — here’s the start of it: This year marks the 25th anniversary of Sir Tim Berners-Lee’s proposal to create what we now call the Web, the visual, hypertext organizing system which overlays the internet. The pace of internet adoption gathered speed once people could more intuitively […]

Filed Under: internet geology, positive patterns Tagged With: Blue Button, Health Datapalooza, Katie McCurdy, Pew Research Center, ProPublica, Quantified Self, RunKeeper, Tracking for Health

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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