When the organizers of a National Cancer Institute workshop on social media and clinical trials invited me to speak, they said: We have an ethical obligation to understand social media. Social media is not just trendy. It’s a tool, an opportunity to act in an ethical way, not only to increase recruitment but to help […]
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Refreshed
Inspired by a suggestion from Michael Seid of the C3N Project, people began tweeting their health care dreams, tagged with #whatifhc. Note: in August 2014 I flipped the order so that new ideas are on top.
Secret questions, naked truths
My prepared remarks for the Quantified Self Public Health Symposium (here are some notes from the event): You know when you type the first few words of a query and Google suggests the rest based on what thousands of other people have typed next? There’s a Twitter account called Google Poetics that takes those suggested phrases […]
Put down the clipboard and listen
Here are the remarks I prepared for the Feb. 6, 2014, Engage & Empower Me class at Stanford Medical School. It’s a long post, so if you’d prefer to zone out, you can watch the video. In thinking about this class, I thought a good framing question for tonight is: How does change happen? How […]
Hypothesis generator
Thomas Goetz, formerly the executive editor at Wired and currently co-founder of Iodine, interviewed me about the work I’ve done and hope to do. I like his description: my research is a hypothesis generator. I told him some news I haven’t shared publicly before. Full text of the interview: Susannah Fox doesn’t have all the […]
A field guide to The Diagnosis Difference
The Pew Research Center released a report today on people living with chronic conditions: The Diagnosis Difference. Policy makers, patient advocates, entrepreneurs, investors, clinicians — all health care stakeholders — can use the data to map the current landscape. There are still barren patches, where people remain offline and cut off from the resources and […]
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