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Susannah Fox

I help people navigate health and technology.

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national cancer institute

Clinical trials jump on the Cluetrain

June 22, 2018 By Susannah Fox 6 Comments

Man rushes toward a modern train

When the organizers of a National Cancer Institute workshop on social media and clinical trials invited me to speak, they said: We have an ethical obligation to understand social media. Social media is not just trendy. It’s a tool, an opportunity to act in an ethical way, not only to increase recruitment but to help […]

Filed Under: research issues, social media, trends & principles Tagged With: Cluetrain Manifesto, national cancer institute, Pew Internet, Pew Research Center, social media

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 36 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

Health Geek Tip: Abstracts are ads. Read full studies when you can.–Susannah Fox

June 16, 2010 By Susannah Fox 16 Comments

Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you:

Filed Under: research issues Tagged With: cancer, Gary Schwitzer, Gilles Frydman, HealthNewsReview, Ivan Oransky, national cancer institute, Wikipedia

All Together Now: The Internet Does Not Replace Health Professionals–Susannah Fox

March 4, 2010 By Susannah Fox 40 Comments

The March 4 issue of the New England Journal of Medicine includes a letter from Brad Hesse, Richard Moser, and Lila Rutten, three National Cancer Institute researchers whose work is a continual inspiration to me. Their analysis of data from the Health Information National Trends Survey (HINTS) shows that the vast majority of Americans, “despite […]

Filed Under: trends & principles Tagged With: hints, national cancer institute, Nejm, Pew Internet

Health Sites: Some Are More Equal Than Others

January 21, 2010 By Susannah Fox 91 Comments

Eric Schmidt wants to solve health care’s “platform database problem” and one critic has  countered that “computers cannot practice medicine.” One of Google’s initiatives is to guide consumers to safe, trusted health websites. Is that such a bad thing? Search result placement can make or break a site or a business model, which is where […]

Filed Under: trends & principles Tagged With: Bing, comScore, Eric Schmidt, Google, Harris Interactive, Healthwise, hitwise, HONcode, librarians, Manhattan Research, Mayo Clinic, national cancer institute, NIH, Pew Internet, Pew Research Center, Webmd, Yahoo

My Idea of Great: Health Data Geeks Convention–Susannah Fox

May 22, 2007 By Susannah Fox 1 Comment

I was lucky enough to be invited to a “Data Users Conference” sponsored by the Health Information National Trends Survey/National Cancer Institute, which really should have been called Health Data Geeks Unite! If you have a moment, I highly recommend browsing through some of the presentations, particularly the following: David Stinchcomb showed how isopleth maps […]

Filed Under: key people Tagged With: data, hints, national cancer institute, survey

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