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Susannah Fox

I help people navigate health and technology.

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Writing

Wikipedia as an e-patient source–Susannah Fox

June 5, 2007 By Susannah Fox 1 Comment

Read this quote and think about which industry is being admonished: “We cannot, however, continue to reject Wikipedia because we aren’t comfortable with the wiki process itself… To be quite frank, continually bad-mouthing Wikipedia to the very people who use it—successfully—makes us look a bit daft. It would be much more productive to teach [people] […]

Filed Under: pts as teachers Tagged With: librarians, parents, patients, students, teachers, Wikipedia

Health Search–Susannah Fox

May 23, 2007 By Susannah Fox Leave a Comment

Bill Tancer is the general manager of global research at Hitwise and writes a column for Time.com called “Science of Search.” His recent column on “Restless Leg, Mumps and Other Maladies” addressed the effect of media attention to certain conditions & diseases. The column is a neat summary of a pattern we had noticed: The […]

Filed Under: demographics Tagged With: breast, cancer, cervical, hitwise, lung, prostate, search, skin, time magazine

My Idea of Great: Health Data Geeks Convention–Susannah Fox

May 22, 2007 By Susannah Fox 1 Comment

I was lucky enough to be invited to a “Data Users Conference” sponsored by the Health Information National Trends Survey/National Cancer Institute, which really should have been called Health Data Geeks Unite! If you have a moment, I highly recommend browsing through some of the presentations, particularly the following: David Stinchcomb showed how isopleth maps […]

Filed Under: key people Tagged With: data, hints, national cancer institute, survey

Personal Health Records–Susannah Fox

May 17, 2007 By Susannah Fox Leave a Comment

Since keeping track of your own health records is part of the e-patient responsibilities described by Charlie Smith in today’s post, I thought I’d point out a study sent to me by Lorenzo Moreno, an analyst at Mathematica Policy Research. His team conducted 3 focus groups with people living in medically underserved sections of New […]

Filed Under: found on the net Tagged With: African American, clinical electronic health record, English, family medical history, immunizations, insurance coverage, Latino, over the counter medications, personal health records, prescriptions, smart card, Spanish

Patient-Driven Content at MedShelf.org–Susannah Fox

May 10, 2007 By Susannah Fox Leave a Comment

Online support groups have long been recognized as an important and unique source of medical information and social support for patients. Derek Hansen, Paul Resnick, and Sean Munson at the University of Michigan’s School of Information, are trying to help online support groups create community repositories using wiki software at http://medshelf.org.

Filed Under: patient networks Tagged With: bulletin boards, derek hansen, e-patients, email listserves, health information, medshelf, online support groups, patient networks, university of michigan, wiki

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Recent Comments

  • Kevin Lawrence on Networkers pool resources: “Thank you, Casey! I know Charlie second-hand, through Gilles but we’ve never connected. I’ll reach out!” May 26, 09:56
  • Mighty Casey on Networkers pool resources: “Wow, Kevin, you’re juggling a lot! Glad you’ve found some resources/connections, would definitely say that #btsm is a good source…” May 26, 09:31
  • Susannah Fox on Networkers pool resources: “Kevin, I’m at a loss for words at the depth of the insights and poignancy you shared here. Let’s begin…” May 26, 08:32

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popular posts

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