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Susannah Fox

I help people navigate health and technology.

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Writing

Health Search–Susannah Fox

May 23, 2007 By Susannah Fox Leave a Comment

Bill Tancer is the general manager of global research at Hitwise and writes a column for Time.com called “Science of Search.” His recent column on “Restless Leg, Mumps and Other Maladies” addressed the effect of media attention to certain conditions & diseases. The column is a neat summary of a pattern we had noticed: The […]

Filed Under: demographics Tagged With: breast, cancer, cervical, hitwise, lung, prostate, search, skin, time magazine

My Idea of Great: Health Data Geeks Convention–Susannah Fox

May 22, 2007 By Susannah Fox 1 Comment

I was lucky enough to be invited to a “Data Users Conference” sponsored by the Health Information National Trends Survey/National Cancer Institute, which really should have been called Health Data Geeks Unite! If you have a moment, I highly recommend browsing through some of the presentations, particularly the following: David Stinchcomb showed how isopleth maps […]

Filed Under: key people Tagged With: data, hints, national cancer institute, survey

Personal Health Records–Susannah Fox

May 17, 2007 By Susannah Fox Leave a Comment

Since keeping track of your own health records is part of the e-patient responsibilities described by Charlie Smith in today’s post, I thought I’d point out a study sent to me by Lorenzo Moreno, an analyst at Mathematica Policy Research. His team conducted 3 focus groups with people living in medically underserved sections of New […]

Filed Under: found on the net Tagged With: African American, clinical electronic health record, English, family medical history, immunizations, insurance coverage, Latino, over the counter medications, personal health records, prescriptions, smart card, Spanish

Patient-Driven Content at MedShelf.org–Susannah Fox

May 10, 2007 By Susannah Fox Leave a Comment

Online support groups have long been recognized as an important and unique source of medical information and social support for patients. Derek Hansen, Paul Resnick, and Sean Munson at the University of Michigan’s School of Information, are trying to help online support groups create community repositories using wiki software at http://medshelf.org.

Filed Under: patient networks Tagged With: bulletin boards, derek hansen, e-patients, email listserves, health information, medshelf, online support groups, patient networks, university of michigan, wiki

Chemotherapy Fog Is No Longer Ignored as Illusion–Susannah Fox

May 1, 2007 By Susannah Fox 1 Comment

April 29’s New York Times featured a story about breast cancer survivors who meet online to talk about “chemo brain” and how to cope with it: “Chemotherapy Fog Is No Longer Ignored as Illusion” (http://www.nytimes.com/2007/04/29/health/29chemo.html?em&ex=1178164800&en=8ddebc22187bd826&ei=5087%0A). Here are some excerpts which reminded me of our ongoing discussions about e-patients: – “Until recently, oncologists would discount it, […]

Filed Under: positive patterns Tagged With: cancer, chemotherapy, e-patients, oncologists

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  • Susannah Fox on Patient-led innovation: “Thank you! I’m very happy to know about your work and will add it to the list.” Feb 1, 09:19
  • Andrea Pauls Backman on Patient-led innovation: “Susannah, great list of patient-led organizations and programs, thank you. I would suggest adding a new, award-winning program co-produced by…” Feb 1, 08:58
  • Susannah Fox on Caregiver starter pack: “Thanks, Raj! You capture what I only implied: I wanted to send only what is absolutely necessary for this moment…” Jan 31, 12:38

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