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Susannah Fox

I help people navigate health and technology.

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Laurie Strongin

Wow! How? Hope for Henry

April 26, 2024 By Susannah Fox Leave a Comment

Cartoons of superhero kids getting medical treatments like an EEG, Central Line Dressing Change, COVID testing, and IV Placement or Blood Draw

Imagine being a little kid and facing not only serious illness, but all the uncomfortable, scary treatments associated with hospitalization: blood draws, IV placements, and scans. Then you find out that you can earn prizes for every medical procedure you go through, thanks to an incentive program called Super Rewards for Super Kids. Kids love […]

Filed Under: Solvers Tagged With: Allen Goldberg, Hope for Henry, Laurie Strongin, Rare Disease, rare diseases, Wow! How? Health

Books I read while writing Rebel Health

January 2, 2024 By Susannah Fox 2 Comments

Books stacked on a shelf

While writing my book, Rebel Health, I dove into the history of innovation and of the patient-led scientific revolution. I read the daring adventures of caregivers, survivors, and patients who pushed the edges of what is possible in medicine. I learned about clinicians’ and researchers’ perspectives on the changes happening in health care. And I […]

Filed Under: key people, research issues Tagged With: Abby Norman, Alondra Nelson, Amy Marcus, Chris Schroeder, Dana Lewis, Danny Sands, David Fajgenbaum, Diana Forsythe, E-Patient Dave, Elaine Schattner, Eric Topol, Eric von Hippel, Fiona Lowenstein, Howard Rheingold, James Fowler, Laurie Strongin, Meghan O'Rourke, MIT Press, Nicholas Christakis, Paul Batalden, Rebel Health, Ross Douthat, Ryan Prior, Sara Riggare, Siren Interactive, Sorrel King, Tom Ferguson, Victor Montori

Designing Peer-to-peer Health

February 10, 2022 By Susannah Fox Leave a Comment

Susannah Fox Ep 59 Design Lab with Bon Ku

“How can peer to peer connection make a healthier society? Can Amazon reviews give us fresh insight into our health? Why do on-line patient communities represent an incredible untapped resource in healthcare? How can a co-designed death give us a fuller life?” Bon Ku and I explore these questions and more in Episode 59 of […]

Filed Under: end of life, peer-to-peer health care Tagged With: Alexandra Drane, BJ Miller, Bon Ku, Engage with Grace, Jodi Ferrier, John Costik, Laurie Strongin, Nightscout, podcast, Sara Riggare, Sarah Stephens Winnay, Yoko Sen

A health & technology pioneer learns that joy, even in illness, doesn’t have an age limit

August 13, 2018 By Susannah Fox 10 Comments

Woman holds her hands in the shape of a heart

The following is a cross-post from the Atlas of Caregiving blog, which is featuring a new series of “caring conversations” with people who connect their professional experience to their caregiving experience. Susannah Fox advises companies and nonprofits on how to navigate the intersection of health and technology. She recently served as the Chief Technology Officer […]

Filed Under: e-patient stories, key people Tagged With: Atlas of Caregiving, Blue Button, caregivers, Family Caregivers, Hope for Henry, Laurie Strongin

Letter to shareholders

January 29, 2018 By Susannah Fox 28 Comments

Susannah Fox in the audience at a public event at the U.S. Dept of Health and Human Services

For tax purposes, I recently added up all the various sources of income I’d received in 2017. It was a real hodge-podge of a year since I left my appointment at the U.S. Department of Health and Human Services (HHS) and started working on my own projects again. This exercise brought home the lesson that […]

Filed Under: key people, positive patterns Tagged With: Cambia Health Solutions, caregivers, family, Hhs, Hope for Henry, HopeLab Foundation, Laurie Strongin, Margaret Laws, Mark Ganz, peer-to-peer healthcare, Warren Buffett

Re-imagining care for hospitalized kids

November 8, 2017 By Susannah Fox 9 Comments

On Nov. 1-2, 2017, Hope for Henry convened a diverse group of parents, kids, clinicians, designers, educators, and entrepreneurs to reimagine care for hospitalized kids. I’ll disclose that I am an advisor to Hope for Henry and helped organize the event, but I hope you’ll believe me when I say that it was, objectively, a […]

Filed Under: hc's problem list, key people, positive patterns, Solvers Tagged With: Allen Goldberg, Hope for Henry, Laurie Strongin, Rare Disease

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