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Susannah Fox

I help people navigate health and technology.

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positive patterns

Chasing cures

September 10, 2019 By Susannah Fox 7 Comments

CHASING MY CURE book cover

Years ago, I met a mom of a child with a rare disease who matter-of-factly shared her story, which included as many twists and close calls as any blockbuster summer movie. I marveled at her heroism and she said no, she rejects that description. “I’m not a hero,” she insisted. “I’m a typical mom. You […]

Filed Under: e-patient stories, key people, positive patterns Tagged With: Abby Norman, Afternoon Napper, Bon Ku, Dana Lewis, David Fajgenbaum, Doug Lindsay, Rare Disease, rare diseases, Sharon Terry, Terry Jo Bichell

Celebrating invention and innovation

July 15, 2019 By Susannah Fox 7 Comments

Tools by Dorli Photography on Flickr

We are going to need all the ingenuity and help we can get to untangle and improve health and health care. Everyone should have access to the data, information, and tools they need to solve problems. That includes access to each other – peer to peer. My hope is for people to look at a […]

Filed Under: positive patterns Tagged With: #InventHealth, Fda, George Hacks, Hhs, Invent Health, Lemelson Center, maker movement, prize competitions, veterans

“Human stories really are what drive us…”

May 22, 2019 By Susannah Fox 2 Comments

Stanford Medicine X stage

The more we open access to the data, information, and tools people need to solve their own problems, the better. That’s the essential message of the research and consulting I’m engaged in these days, helping leaders to see the opportunities that spring, for example, from tapping into the zeitgeist of social platforms and new data […]

Filed Under: key people, peer-to-peer health care, positive patterns Tagged With: #wearenotwaiting, Dana Lewis, diabetes, Health Data, HopeLab Foundation, OpenAPS, teens, Vicky Rideout, Well Being Trust

Building the evidence base for peer health advice

March 4, 2019 By Susannah Fox 7 Comments

Stone carving of a hand holding old fashioned scales

Imagine an intervention that produces results like these: One-third of those living with chronic conditions are now more likely to take necessary medications. The risk of admission to a neonatal ICU during first year of life reduced by 63%. People with with poorly-controlled diabetes were able to achieve a 1.1-point reduction in their HbA1c. Each […]

Filed Under: peer-to-peer health care, positive patterns Tagged With: Centering Healthcare Institute, Centering Pregnancy, Chronic Conditions, diabetes, flip teaching, patientslikeme, peer-to-peer healthcare, Society of Behavioral Medicine

Linking & Amplifying User-centered Networks through Connected Health (L.A.U.N.C.H.)

October 18, 2018 By Susannah Fox 4 Comments

Three lines of far away mountain ranges

Continuing my practice of “flipping” an event — posting what I hope to get across in advance in order to jump start the conversation, here is a preview for a panel set to take place at 12pm on Friday, Oct. 19, in Boston. One of the maxims I carry with me into every meeting and […]

Filed Under: key people, positive patterns Tagged With: connected health, Don Berwick, Don Norman, flip teaching, LAUNCH, Lisa Klesges

Blue Button’s North Star

August 23, 2018 By Susannah Fox Leave a Comment

Red Stop sign with stickers, so it reads: DON'T STOP BELIEVING

Blue Button is a Trojan horse for culture change in the American health care system. It places power in the hands of patients and whets the data appetites of millions of Americans and the companies who would like to serve them. If you’ve never heard of Blue Button, here’s a quick overview: The federal government […]

Filed Under: health data, medical records, policy issues, positive patterns Tagged With: Blue Button, FHIR, Hhs, Mark Scrimshire, Markle Foundation, Medicare, VA, veterans, White House

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