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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

How did you find your people?

April 17, 2017 By Susannah Fox 33 Comments

The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]

Filed Under: peer-to-peer health care Tagged With: ACOR, ALS, cancer, cystic fibrosis, Danny Sands, E-Patient Dave, Emily Kramer-Golinkoff, patientslikeme, peer-to-peer healthcare, Smart Patients

The online health revolution (it’s not too late to jump in)

April 11, 2017 By Susannah Fox 4 Comments

Thanks to Joyce Lee, MD, for resurfacing this talk on Twitter today! In watching it again, I’m struck by how the data needs to be updated, but the insights don’t. Clinicians have not yet missed their chance to contribute to the online health revolution (nearly 4 years later)! The tools are going to change, but what […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: Clinicians, Pew Internet

“His doctors were stumped. Then he took over.”

February 5, 2017 By Susannah Fox Leave a Comment

New York Times Sunday Business story on Feb. 5, 2017: Doctor, Cure Thyself

How might we empower people to participate in research about their own diseases or conditions? Which models work best for organizations solving medical mysteries or improving care for those living with rare conditions? These are two of the questions raised by a New York Times story today: “His doctors were stumped. Then he took over,” by Katie Thomas […]

Filed Under: hc's problem list, key people, participatory research, patient networks, peer-to-peer health care Tagged With: C3N Project, David Fajgenbaum, patientslikeme, peer-to-peer healthcare, Rare Disease, Smart Patients

Invent Health

November 27, 2016 By Susannah Fox 2 Comments

As winter sets in here in DC, I’m warming up with memories of September’s Stanford Medicine X conference. I loved putting together a keynote that highlighted how the maker movement intersects with the e-patient movement — and how private sector and government leaders can benefit. This intersection, and the lessons we are learning from it, are the latest examples […]

Filed Under: peer-to-peer health care, policy issues Tagged With: Hhs, home health care hacks, Invent Health, Stanford Medicine X

Documents of controversial times

September 16, 2016 By Susannah Fox 5 Comments

Common Sense, a pamphlet by Thomas Paine (1776)

I’m speaking today at Stanford Medicine X about what I’ve learned exploring the intersection between the Maker movement and health care (tune in at 4:25pm Pacific). I posted a short version of my remarks on Medium, but I thought I’d post an image I was very happy to find to illustrate one theme: revolutions happen when people are […]

Filed Under: peer-to-peer health care, positive patterns Tagged With: home health care hacks, Invent Health, peer-to-peer healthcare

Managing the risk of food allergy

July 31, 2016 By Susannah Fox 9 Comments

Benadryl tablets

When our child was diagnosed with food allergies, we were absorbed into a new way of life, learning the folkways of keeping our baby safe. We labeled every jar and can in our pantry and fridge so that anyone who visited could see at a glance what was safe (green) or unsafe (red). Like Curtis Sittenfeld, who […]

Filed Under: peer-to-peer health care Tagged With: food allergy

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Recent Comments

  • James on Wow! How? Obesity Treatment: “Inspiring read! Ilant Health’s holistic, shame-free approach to obesity care is exactly what’s needed to address a complex condition with…” Sep 30, 01:23
  • Susannah Fox on Caregiving in America: “I hear you, Mickey! You likely already know about Caring Across Generations and other organizations that have tried to move…” Sep 25, 14:51
  • Mickey Alderman on Caregiving in America: “Interesting information. Being unpaid is a huge issue that has been ongoing for decades. The question we keep asking is…” Sep 25, 10:42

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