Over the next two days, I’ll be part of a group convened by Eleonore Pauwels and Todd Kuiken to discuss barriers to citizen-driven biomedical research. If you are intrigued, read the report, “The Rise of the New Bio-citizen,” which lays out how people “are pursuing a range of activities from analyses of genomic data for […]
peer-to-peer health care
A good death
You might think, looking at the open tabs on my browser, that I’ve got death on my mind. And you would be right. My father passed away in December from melanoma. The end was about as peaceful as we could have hoped for, but it was still hard to watch. I spent most of what […]
Unrest
The film “Unrest” will debut on Independent Lens this week (check your local listings — in the DC area it will air on Jan. 12 at 10:30pm on WETA). I couldn’t wait and bought my own digital copy on Amazon. Let me just say: It’s no surprise that it’s on the short list for an Academy […]
When it comes to health, your community may be your superpower
“You may not know it, but you could have a superpower.” That’s the opening line of the video we released today on DocMikeEvans’s YouTube channel: Mike Heinrich and his amazing team at Reframe Health produced the storyboards and audio effects. This project was supported by the Robert Wood Johnson Foundation Global Ideas Fund at CAF America. […]
Waiting with open arms
I’m honoring the contributions of my community colleagues over the years by pulling out some of their best comments and quotes. Emily Kramer-Golinkoff, in response to “A field guide to The Diagnosis Difference” (2013): My advice to a person or parent of a child newly diagnosed with Cystic Fibrosis would be: “I can only imagine […]
Tapping into my superpower – you
Friends, I have a personal request. On Friday, December 8, Reframe Health Lab will release a video about peer health advice. It’s my best shot yet at inspiring people to go online not only for information, but also to connect with each other. It was an honor to work with Mike Evans, MD, and Wendy […]
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