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Susannah Fox

I help people navigate health and technology.

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patient networks

The internet spins both ways

June 18, 2014 By Susannah Fox 2 Comments

Did you know some doctors once had a hand signal to warn their colleagues about internet-using patients? I talk about this and other health care history, plus a bit about the possible future (including some market opportunities), in an interview with Alex Howard: One study I cite in this segment of our conversation centers on […]

Filed Under: patient networks, peer-to-peer health care, social media, trends & principles Tagged With: Alex Howard, Health Datapalooza, peer-to-peer healthcare, self-tracking, Tracking for Health

Evolution of online patient communities

February 1, 2014 By Susannah Fox 28 Comments

A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]

Filed Under: e-pts resources, patient networks Tagged With: Facebook, Smart Patients

How do we know that social media is important to health care?

October 21, 2013 By Susannah Fox 28 Comments

Update: the videos are up — thanks, @EinsteinMed! On Friday, I spoke at the Albert Einstein College of Medicine, along with Kevin Pho, MD. During a planning call, the symposium organizers had shared results from a faculty survey: Fully two-thirds do not use social tools on a regular basis. Asking them, therefore, to spend a half-day […]

Filed Under: demographics, net-friendly docs, patient networks, pt/doc co-care, social media, trends & principles Tagged With: california healthcare foundation, KevinMD, medical education, Pew Internet, Pew Research Center

Peer-to-peer health care is a slow idea that will change the world

August 3, 2013 By Susannah Fox 63 Comments

2018 update: Watch a 10-minute video that captures the essentials of peer health advice. Someone recently asked me to name the most exciting innovation in health care today. I think he was hoping for a sexy technology tip, like an app that’s catching fire in the expert patient communities I follow. Nope. I’ve said it […]

Filed Under: patient networks, peer-to-peer health care, positive patterns Tagged With: Atul Gawande, C3N Project, Pew Internet, Pew Research Center, Smart Patients

Sincerity in the storm (welcome to our world)

November 4, 2012 By Susannah Fox 5 Comments

Hurricane Sandy “slapped the snark out of Twitter” for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social media to navigate an acute or chronic health condition: – Twitter turns serious during a crisis – Certain users and hashtags can […]

Filed Under: patient networks, peer-to-peer health care, social media Tagged With: #bcsm, #whatifhc, New York Times, Twitter

Listening to patients at Medicine 2.0

September 18, 2012 By Susannah Fox Leave a Comment

I wrote a long post on e-patients.net about my one day at Medicine 2.0 on Saturday. Here are a few highlights — people who focused on listening to patients and caregivers: “To learn listen well to impressions voiced by patients first” – Sally Okun of PatientsLikeMe closed her presentation with this poem.

Filed Under: patient networks, pts as teachers Tagged With: diabetes, hospice, medicine 2.0, patientslikeme

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