Conference tweets are a little like brunch pics on social media. Sometimes I want to reach out and say, “Shhh, it’s OK. I’m so happy that you’re happy with your eggs, but you don’t need to show them to me.” Then again, sometimes you see a pic that makes your mouth water and you think, […]
patient networks
“One person’s TMI is another person’s need-to-know.”
– Meredith Gould, aptly summarizing a key discussion point for our upcoming panel, “Communicating the experience of illness in the digital age.” (TMI stands for “too much information.”) We are flipping the panel, posting ideas and sparking conversations in advance so that when we arrive at Stanford Medicine X, the on-stage event will be one more […]
How did we get here? And where are we going?
Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]
Health Care Hackers
Destination DIY is an independently-produced public radio show and podcast featuring creative solutions to big problems. Sarah Yahm did a beautiful job producing the latest show and I was honored to be part of it: https://soundcloud.com/destinationdiy/health-care-hackers A few footnotes: I name PatientsLikeMe as an example of an organization that helps people who want to help […]
The internet spins both ways
Did you know some doctors once had a hand signal to warn their colleagues about internet-using patients? I talk about this and other health care history, plus a bit about the possible future (including some market opportunities), in an interview with Alex Howard: One study I cite in this segment of our conversation centers on […]
Evolution of online patient communities
A conversation broke out on Twitter this morning about the evolution of online patient communities — how some people prefer to stick with older, familiar, “it just works” technologies rather than try to migrate to a new platform. Catch up by reading this Storify. I’d love to work on this with the health geek tribe […]
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