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Susannah Fox

I help people navigate health and technology.

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“Pursue hope like it’s an outlaw.”

March 17, 2014 By Susannah Fox 3 Comments

Zebras by schinkerj on Flickr

– Afternoon Napper during Rare Disease week in Washington, DC I love that line and that spirit — and this image captured by John Schinker because it looks like these zebras have formed a posse and are heading out on the trail together. When you hear hoofbeats, think “horses” but don’t rule out zebras.* And if you’re […]

Filed Under: beauty and wonder Tagged With: Rare Disease

Persistence vs. flow

March 11, 2014 By Susannah Fox 18 Comments

Aerial view of Choptank River with meandering tributaries cutting through greenery

The Pew Research Center has released its latest report celebrating the 25th anniversary of the Web. This one looks forward to 2025, with experts’ predictions. Here’s my favorite quote so far, from the “Pithy Additions” section: Jerry Michalski, founder of REX, the Relationship Economy eXpedition, observed, “The Internet gives us Persistence — the ability to leave things for […]

Filed Under: internet geology, trends & principles Tagged With: #bcsm, AIDS.gov, Bedsider, Flip the Clinic, Jerry Michalski, Lisa Bonchek Adams, patientslikeme, Pew Research Center, SeattleMamaDoc, Smart Patients

Health data’s adolescence

March 5, 2014 By Susannah Fox 8 Comments

I wrote a guest post for the Health Data Consortium — here’s the start of it: This year marks the 25th anniversary of Sir Tim Berners-Lee’s proposal to create what we now call the Web, the visual, hypertext organizing system which overlays the internet. The pace of internet adoption gathered speed once people could more intuitively […]

Filed Under: internet geology, positive patterns Tagged With: Blue Button, Health Datapalooza, Katie McCurdy, Pew Research Center, ProPublica, Quantified Self, RunKeeper, Tracking for Health

Big (really big) data comes to health care

March 4, 2014 By Susannah Fox Leave a Comment

In December 2013, Kira Peikoff wrote about how, when she had her DNA tested by three direct-to-consumer companies, the results were all over the place. She interviewed experts to get their advice: J. Craig Venter, chief executive of his namesake institute and of Synthetic Genomics, was a pioneer in sequencing the human genome in 2000. Though […]

Filed Under: key people Tagged With: big data, genomics, Quantified Self, Tracking for Health

Extremely rare, incredibly typical

February 28, 2014 By Susannah Fox 5 Comments

After nearly 15 years tracking the cultural shifts happening at the intersection of health and the internet, I know a few things. #1 – don’t get between a parent and a piece of information he or she needs to make a decision about the health of a child. #2 – from 28.8 modems to the latest smartphones, […]

Filed Under: peer-to-peer health care Tagged With: Rare Disease

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
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