The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter. The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).
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Patient Power: Andrew Schorr–Susannah Fox
Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a […]
Response to Tara Parker-Pope’s “You’re Sick. Now What?”–Susannah Fox
Christine Gray’s comments on the New York Times open thread merit a separate post (updated on 10/7/2008): Five years ago, when many pediatric hospitals were unaware of or unwilling to acknowledge the capacities of online medical support groups, my thirteen-year-old daughter was diagnosed with a subset of a rare cancer (sarcoma or soft tissue cancer). […]
New York Times Health Section
The New York Times published an amazing array of health articles yesterday, each one of which is worthy of a discussion on this blog (and not just because we were mentioned in this one). But I also want to take a minute to appreciate the entire online Health section of the Times, which consistently grabs […]
Crowdsourcing a Survey: Health Topics–Susannah Fox
The Pew Internet Project will conduct a national telephone survey this fall about the internet’s impact on health and health care. One of the first tasks is to look at our tried and true “trend” questions and decide which ones we should repeat as is and which ones need to be updated. Since I benefit […]
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