In 2005, I took a call from someone who worked at Planned Parenthood. He wanted the conversation to be off the record, so I didn’t even write down his name, which is a shame because that conversation changed the direction of my career. The caller had seen media coverage of Pew Internet’s health research, probably […]
Tom Ferguson
Put down the clipboard and listen
Here are the remarks I prepared for the Feb. 6, 2014, Engage & Empower Me class at Stanford Medical School. It’s a long post, so if you’d prefer to zone out, you can watch the video. In thinking about this class, I thought a good framing question for tonight is: How does change happen? How […]
Never assume that what you are seeing or experiencing is everyone else’s reality.
Atul Gawande can shine a bright spotlight, even with just a few tweets. On Saturday he linked to an article about new social media guidelines for physicians which states: Aside from not “friending” patients [on Facebook], the guidelines also recommend the following to physicians: • Don’t use text messaging for medical interactions, even with established […]
The e is for engagement
What if we redefined the Quantified Self movement to include everyone who keeps a pair of “skinny jeans” in their closet? What if the 85% of U.S. adults who own a cell phone understood that it’s potentially a tool for health tracking? What if everyone designing health care tools first talked with patients and caregivers […]
Healthcare Out Loud
Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising even myself with some of what […]
Participatory medicine and health data rights on NPR
NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights. Much of what I said during my interview with Joseph Shapiro is based on what I’ve written and read here on e-patients.net, so, first, thank you. I’ve already started answering questions on […]
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