An excerpt of a post on the Iodine blog: Imagine living with a condition so rare that every time you see a new doctor they confess to Googling it outside the exam room door.
Pew Research Center
Prepare
What if this was played on a loop in Times Square? What if every health conference displayed it on a screen at the front of the hall, to accompany every speaker? How might we prepare for what is coming? Thoughts, comments, inspiration, tips welcome in the comments!
Break my heart, make me change
Take a deep breath and then look at this data about HIV in the U.S.: I have seen these numbers before, but never laid out so clearly and so beautifully. Thank you, Jeff Guo of the Washington Post, for breaking my heart. Thank you, because I think we all need our hearts broken anew from […]
Who is ready to stand naked in front of the mirror of data?
In this talk at the Quantified Self Public Health symposium, I argue that we must respect the context of people’s lives while designing health interventions, tools, and research projects. Not everyone is ready to stand naked in front of the bright light of numbers on a screen. Let’s be gentle in our approach, especially to […]
I’m leaving Pew Research
Believe it or not, 14 years ago, the idea of using the internet for health was a novel concept. That’s when Pew Internet published its first report about the social impact of the internet on health and health care, raising eyebrows across the U.S. Our data was cited in mainstream news outlets, in JAMA, and, […]
How did we get here? And where are we going?
Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]
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