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Susannah Fox

I help people navigate health and technology.

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    • Digital Health Practices Among Teens and Young Adults: Key Findings
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patientslikeme

Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious.

May 25, 2011 By Susannah Fox 108 Comments

Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize that knowledge to make it useful for as many people as possible. An idea whose time […]

Filed Under: participatory research, peer-to-peer health care, trends & principles Tagged With: altruism, Children's Hospital Boston, Ian Eslick, Kevin Kelly, MIT Media Lab, patientslikeme, peer-to-peer healthcare, Pew Internet, Quantified Self, TuDiabetes

PatientsLikeMe goes wide

April 11, 2011 By Susannah Fox 6 Comments

PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV, depression, epilepsy, fibromyalgia, multiple sclerosis and organ […]

Filed Under: found on the net, patient networks, peer-to-peer health care Tagged With: patientslikeme, peer-to-peer healthcare

Healthcare Out Loud

February 25, 2011 By Susannah Fox 52 Comments

Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising even myself with some of what […]

Filed Under: patient networks Tagged With: #epatcon, ACOR, braintalk, E-Patient Dave, Healthcentral, patientslikeme, Patti Brennan, Pew Internet, Regina Holliday, Tom Ferguson

“They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy–Susannah Fox

December 28, 2010 By Susannah Fox 26 Comments

Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D.,  last September: As you listen to Dr. Coombs’s chilling story about a man who lost his foot because nobody ever took his sock off to examine it, please review Jessie’s […]

Filed Under: shared decision making, Why PM Tagged With: Alice Tolbert Coombs, Jessie Gruman, Journal of Participatory Medicine, Mayo Transform, participatory medicine, patientslikeme, Paul Wicks, Pew Internet

President’s Cancer Panel: Input, Please–Susannah Fox

November 30, 2010 By Susannah Fox 37 Comments

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).

Filed Under: policy issues, pts as teachers, research issues Tagged With: ACOR, Andrew Schorr, Bill Claxton, cancer, Center For Studying Health System Change, Chordoma, Erin McCartney, hints, Institute Of Medicine, national cancer institute, Palo Alto Medical Foundation, patientslikeme, Pew Internet

Patient Communities: Which Way Forward?–Susannah Fox

August 9, 2010 By Susannah Fox 21 Comments

If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created by this umbrella group? This isn’t just some health geek SimCity exercise. I was actually asked that question recently, by people who have lined up the […]

Filed Under: patient networks Tagged With: ACOR, cancer, Decision Tree, health 2.0, imedo, iWantGreatCare, paginemediche.it, Paris, participatory medicine, patientslikeme, Pew Internet, The Moment

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popular posts

  • Hack needed: Tiny pills, trembling hands
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Recent Comments

  • Dave deBronkart on Hack needed: Tiny pills, trembling hands: “A later article on Choi’s project: https://www.cbc.ca/radio/asithappens/as-it-happens-the-monday-edition-1.5868846/how-tiktok-users-designed-a-better-pill-bottle-for-people-with-parkinson-s-1.5868848” Jan 17, 19:04
  • Susannah Fox on Hack needed: Tiny pills, trembling hands: “Update: Peer-to-peer connections, open-source design, and new manufacturing capabilities may have yielded a solution. Here’s the story: TikTok Users Rally…” Jan 11, 06:39
  • Susannah Fox on Lessons learned about hospice care: “Erica, thank you for fighting for your grandmother and I’m sorry for your loss. So many themes and vignettes in…” Jan 4, 08:25

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  • Beauty and Wonder
  • Demographics
  • Key People
  • Participatory Research
  • Peer-to-Peer Health Care
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