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Susannah Fox

I help people navigate health and technology.

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patientslikeme

Save us, Facebook

November 20, 2014 By Susannah Fox 24 Comments

Erin and Drew

The Reuters story about Facebook taking its “first steps into healthcare” read like an announcement that Las Vegas was getting into entertainment or that New York City was getting into fashion. Extraordinary health communities have grown up between the cracks of Facebook’s platform. It’s just that up until now executives publicly looked the other way. […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: cystic fibrosis, Erin Moore, Facebook, Inspire, mitochondrial disease, patientslikeme, Smart Patients

Why sharing is the future of healthcare

October 31, 2014 By Susannah Fox 10 Comments

An excerpt of a post on the Iodine blog: Imagine living with a condition so rare that every time you see a new doctor they confess to Googling it outside the exam room door.

Filed Under: peer-to-peer health care Tagged With: cdc, Iodine, patientslikeme, Pew Research Center

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

The Vasa, which sank on its maiden voyage in 1628

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

Persistence vs. flow

March 11, 2014 By Susannah Fox 18 Comments

Aerial view of Choptank River with meandering tributaries cutting through greenery

The Pew Research Center has released its latest report celebrating the 25th anniversary of the Web. This one looks forward to 2025, with experts’ predictions. Here’s my favorite quote so far, from the “Pithy Additions” section: Jerry Michalski, founder of REX, the Relationship Economy eXpedition, observed, “The Internet gives us Persistence — the ability to leave things for […]

Filed Under: internet geology, trends & principles Tagged With: #bcsm, AIDS.gov, Bedsider, Flip the Clinic, Jerry Michalski, Lisa Bonchek Adams, patientslikeme, Pew Research Center, SeattleMamaDoc, Smart Patients

Mobile, social, health, care

November 15, 2013 By Susannah Fox 33 Comments

Two people holding hands at the mouth of a tunnel. Uploaded by Adam Foster on flickr

A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your meds is essential to maintaining your health when you live with a chronic condition. People know this, but they need help doing it. […]

Filed Under: peer-to-peer health care, positive patterns, trends & principles Tagged With: diabetes, epilepsy, HIV/AIDS, Kenya, mhealth summit, mobile, patientslikeme, peer-to-peer healthcare, Project HealthDesign, QuitNet, smoking cessation, SMS

Who provides the fuel for the health data fire? Hint: Look in the mirror.

April 1, 2013 By Susannah Fox 6 Comments

“If iron ore was the raw material that enriched the steel baron Andrew Carnegie in the Industrial Age, personal data is what fuels the barons of the Internet age.” – a line from Somini Sengupta’s article in the Sunday New York Times, “Letting Down Our Guard With Web Privacy.” I think personal data is fueling health […]

Filed Under: key people, trends & principles Tagged With: Alessandro Acquisti, E-Patient Dave, Ian Eslick, New York Times, patientslikeme, privacy, Somini Sengupta, TuDiabetes, William Gunn

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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