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Susannah Fox

I help people navigate health and technology.

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diabetesmine

Wow! How? For Love & Life

June 4, 2024 By Susannah Fox Leave a Comment

Movie poster: For Love and Life: No Ordinary Campaign. Amazon Prime May 28. Two people embrace, smiling, looking up.

This essay is part of my LinkedIn newsletter series: Wow! How? Health. Brian Wallach and Sandra Abrevaya brought their second daughter home on the same day that he received a devastating diagnosis: amyotrophic lateral sclerosis (ALS). Brian was told he had six months to live. Seven years later, Brian is still alive. He and Sandra […]

Filed Under: Champions, Networkers Tagged With: ALS, Amy Tenderich, Anthony Carbajal, Brian Wallach, Casey Quinlan, diabetesmine, Elizabeth Jameson, Gilles Frydman, I AM ALS, Jamie Heywood, Katie McCurdy, Maggie Whittum, Michael Graves, Pictal Health, Rebel Health, Sandra Abrevaya, Stephen Heywood, Synapticure, Wow! How? Health, Yoko Sen

Inventing the future

June 2, 2021 By Susannah Fox 8 Comments

Close up picture of a dandelion

If you want to meet the future faster, go out to the edges of your field of vision. Find out what pioneers and rebels are doing and learn from them. Sometimes that means taking a virtual helicopter ride up to the zenith of tech development, as I did recently, watching Dario Gil, SVP and Director […]

Filed Under: Champions, health data, patient networks, peer-to-peer health care, policy issues, Solvers Tagged With: #wearenotwaiting, Amy Tenderich, Ben Eloff, Dario Gil, diabetes, diabetesmine, Hhs, IBM, Invent Health, kidney disease, KidneyX, Maja Vukovich

What I’m reading, listening to, admiring…

January 10, 2015 By Susannah Fox 8 Comments

Susannah at the library

I hunkered down at the library this week, working on a couple of long-term projects. I kept one eye on Twitter, though, as I always do, and wanted to share what distracted — and inspired — me this week: Radiolab: Worth — what would you pay for another month of life? How about a year? […]

Filed Under: beauty and wonder, maternity, positive patterns, social media Tagged With: Amy Romano, Cluetrain Manifesto, cystic fibrosis, diabetes, diabetesmine, Facebook, Kerri Sparling, may I suggest, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Wendy Sue Swanson

Imagining better outcomes for T1D with #MakeHealth

December 18, 2014 By Susannah Fox 8 Comments

Glucose meter displaying the number 85

This post originally appeared on Diabetes Mine. Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a new system of care for people living with Type 1 diabetes (T1D). The best way I can describe the group is that everyone […]

Filed Under: hc's problem list, net-friendly docs, pt/doc co-care, pts as teachers Tagged With: #makehealth, C3N Project, diabetes, diabetesmine, Joyce Lee, T1D Exchange, Type 1 Diabetes

The network is our superpower

January 20, 2014 By Susannah Fox 22 Comments

Justice League by roadkillbuddha on Flickr

My kids love to talk about superpowers — the ability to fly, to heal, to be in two places at once, or to have super-strength. We debate the merits of each one, which combinations we would choose if we could have two, etc. I’ve come to realize that I have a superpower. We all do. […]

Filed Under: peer-to-peer health care, social media Tagged With: Dan Fleshler, diabetesmine, Lisa Bonchek Adams

Participant-Entrepreneurs: Innovating Toward Better Health–Susannah Fox

May 13, 2010 By Susannah Fox 4 Comments

Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard for transparency in research and innovation as he blogs about his work with Project HealthDesign: On days where I could have benefited from the feedback of [Observations of Daily Living] the most, I was the least likely to be recording them. Why? On the worst […]

Filed Under: e-patient stories, key people Tagged With: Contagion Health, Crohnology.MD, CureTogether, diabetesmine, getupandmove.me, i'm too young for this, Project HealthDesign, Robert Wood Johnson Foundation, Transparency

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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