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Susannah Fox

I help people navigate health and technology.

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Search Results for: internet access

From stunt to solution

March 1, 2021 By Susannah Fox 2 Comments

Motorbike stunt rider hanging off the seat, mid-air, against a blue sky

I’m so nostalgic for breathing in other people’s ideas and aerosols that I’m re-reading notes from past meetings. Today’s inspiration: a March 2018 meeting convened by Eleonore Pauwels and Todd Kuiken to discuss barriers to citizen-driven biomedical research. My notes: Community biolabs, incubators, and accelerators are like ramps and bridges for citizens to gain access […]

Filed Under: participatory research, policy issues Tagged With: Eleonore Pauwels, Todd Kuiken

Why entrepreneurs should listen to patients & caregivers

April 9, 2020 By Susannah Fox 1 Comment

Screenshot of Harvard Business Review article about how chronic disease patients are innovating together online

I am thrilled to share this excerpt from the Harvard Business Review article I wrote, “How Chronic-Disease Patients Are Innovating Together Online”: The internet gives us virtually unlimited access to each other. That deceptively simple insight is an untapped opportunity in health care. When companies are searching for their next idea, they should look to […]

Filed Under: peer-to-peer health care, social media Tagged With: Christopher Snider, Chronic Conditions, chronic disease, Dana Lewis, HopeLab Foundation, innovation, Vicky Rideout, Well Being Trust

Chasing cures

February 3, 2020 By Susannah Fox 10 Comments

Decorative: blue gossamer

Bon Ku, MD, a regular on the TV show “Chasing the Cure,” and David Fajgenbaum, MD, MBA, author of CHASING MY CURE, invited me to join their upcoming panel at the Health Datapalooza. Guess what title we chose? We are nothing if not consistent: Chasing cures. We intend to focus on how open source principles can break […]

Filed Under: health data, Networkers, patient networks, peer-to-peer health care, policy issues, Seekers Tagged With: flip teaching, Health Datapalooza, Rare Disease, rare diseases

Crowd-diagnosing STDs on Reddit

January 27, 2020 By Susannah Fox 20 Comments

Questions marks painted on pavement

Reddit is a massive Petri dish of human conversation, rife with peer-to-peer health encounters, so I was thrilled when Jane Sarasohn-Kahn alerted me to this article: “People Are Flocking to the Internet to Crowdsource Their STD Diagnosis—Yes, Really.” It focuses on a subreddit (aka online community) devoted to sexually-transmitted diseases (STDs). Kudos to Parade for […]

Filed Under: peer-to-peer health care Tagged With: jama, peer-to-peer healthcare, sexual health, STIs

How might we push power out to the edges of the network?

January 24, 2020 By Susannah Fox Leave a Comment

Oak tree leaves budding

Cambia Health Solutions’ podcast, HealthChangers, invited me to share a few lessons learned, both personally and professionally. Listen in or read the transcript (below): Leslie Constans: One of the things I wanted to kick off our conversation with was finding out a little bit about this idea of working at the intersection of health and technology […]

Filed Under: health data, public Q&A Tagged With: Cambia Health Solutions, caregivers, HopeLab Foundation, Pew Internet, Pew Research Center, Well Being Trust

Why should anyone care about health data interoperability?

September 16, 2019 By Susannah Fox 6 Comments

Medical records closes at 5pm on Friday by Regina Holliday

A question I hear quite often, sometimes whispered, is: Why should anyone care about health data interoperability? It sounds pretty technical and boring. If I’m talking with a “civilian” (in my world, someone not obsessed with health care and technology) I point out that interoperable health data can help people care for themselves and their families […]

Filed Under: health data Tagged With: Amazon, Clinical Trial Data, FHIR, Health Data Rights, Hugo Campos, medical devices

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