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Susannah Fox

I help people navigate health and technology.

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Champions

Wow! How? Peer Support for Queer Youth

July 25, 2024 By Susannah Fox Leave a Comment

A young woman holds her phone up so it blocks her face. Background is a field of yellow flowers.

Today’s “wow” is unfortunately a troubling statistic: 49% of LGBTQ+ young people in the U.S. experience depressive symptoms, according to a survey conducted by Hopelab and Common Sense Media, compared with 24% of their straight and cisgender peers. But many Queer youth are meeting the challenge by accessing online therapy to a greater degree (44%, […]

Filed Under: Champions, demographics, peer-to-peer health care, research issues, social media Tagged With: Amy Green, Common Sense Media, HopeLab Foundation, LGBTQ, Rebel Health, TRACE, Wow! How? Health

Wow! How? Patient-led Biodesign

July 11, 2024 By Susannah Fox Leave a Comment

Wow! How? Health

This post is part of my LinkedIn series: Wow! How? Health. Jules Sherman designs pediatric medical products, like a delayed cord-clamping cart and a special robe to help make neonatal skin-to-skin care safer. In 2016, she was called into a hospital room to observe a new mom using a device that Sherman had created to collect […]

Filed Under: Champions, maternity, peer-to-peer health care, Solvers Tagged With: Jules Sherman, Rebel Health, Wow! How? Health

Wow! How? Obesity Treatment

June 28, 2024 By Susannah Fox Leave a Comment

Cartoon of 4 people exercising, holding a laptop, or holding a book

This post is part of my LinkedIn series: Wow! How? Health. Four in ten U.S. adults have obesity, according to the National Center for Health Statistics. That includes 9% of U.S. adults with severe obesity, which is defined as having a body mass index over 40. Shame and stigma compound their health problems. “You wear […]

Filed Under: Champions, health data, Networkers, peer-to-peer health care, Seekers, Solvers Tagged With: diet, Elina Onitskansky, Ilant Health, obesity, Rebel Health, Wow! How? Health

Wow! How? For Love & Life

June 4, 2024 By Susannah Fox Leave a Comment

Movie poster: For Love and Life: No Ordinary Campaign. Amazon Prime May 28. Two people embrace, smiling, looking up.

This essay is part of my LinkedIn newsletter series: Wow! How? Health. Brian Wallach and Sandra Abrevaya brought their second daughter home on the same day that he received a devastating diagnosis: amyotrophic lateral sclerosis (ALS). Brian was told he had six months to live. Seven years later, Brian is still alive. He and Sandra […]

Filed Under: Champions, Networkers Tagged With: ALS, Amy Tenderich, Anthony Carbajal, Brian Wallach, Casey Quinlan, diabetesmine, Elizabeth Jameson, Gilles Frydman, I AM ALS, Jamie Heywood, Katie McCurdy, Maggie Whittum, Michael Graves, Pictal Health, Rebel Health, Sandra Abrevaya, Stephen Heywood, Synapticure, Wow! How? Health, Yoko Sen

Wow! How? Mystery vs. Moms

May 24, 2024 By Susannah Fox 3 Comments

Wow! How? Health

When her daughter, Sara, transformed from an active teen to a nearly catatonic shell of a person, Eileen Quinn knew she had to take action. Unfortunately, since Sara lives with Down syndrome her symptoms were likely to be dismissed as sad but inevitable. But Quinn had a hunch that her daughter’s rapid decline was not […]

Filed Under: Champions, Networkers, Seekers Tagged With: Down syndrome, Eileen Quinn, Jonathan Santoro, Rebel Health, Richard Sima, Washington Post, Wow! How? Health

Discovery Diaries with Damon Davis

May 16, 2024 By Susannah Fox Leave a Comment

Rebel Health: A field guide to the patient-led revolution in medical care

Damon Davis has a new podcast, Discovery Diaries, and I was honored be among his first guests. We got into a wide range of topics: the origins of my interest in patient-led innovation; artificial intelligence and how patients, survivors, and caregivers should be included in the design of AI tools; our time working together at […]

Filed Under: Champions, Networkers, Seekers, Solvers Tagged With: AA, Ben West, Black Panther Party, Bryan Mazlish, caregivers, Damon Davis, Dana Lewis, diabetes, E-Patient Dave, Fda, food allergy, Hhs, Hugo Campos, Jane Sarasohn-Kahn, peer-to-peer healthcare, Regina Holliday

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
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