Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]
peer-to-peer health care
Just in time someone like me
In 2005, I took a call from someone who worked at Planned Parenthood. He wanted the conversation to be off the record, so I didn’t even write down his name, which is a shame because that conversation changed the direction of my career. The caller had seen media coverage of Pew Internet’s health research, probably […]
Health Care Hackers
Destination DIY is an independently-produced public radio show and podcast featuring creative solutions to big problems. Sarah Yahm did a beautiful job producing the latest show and I was honored to be part of it: https://soundcloud.com/destinationdiy/health-care-hackers A few footnotes: I name PatientsLikeMe as an example of an organization that helps people who want to help […]
The internet spins both ways
Did you know some doctors once had a hand signal to warn their colleagues about internet-using patients? I talk about this and other health care history, plus a bit about the possible future (including some market opportunities), in an interview with Alex Howard: One study I cite in this segment of our conversation centers on […]
Just-in-time help
Jodi Sperber snapped this photo of an older man helping a younger man with his tie on the T in Boston. I love it and shared it online (after getting Jodi’s permission). Roni Zeiger was one friend I sent it to and he replied, “Networks of microexperts ready to help each other: you never know where […]
Every-day magic
I’ve been following Bertrand Might’s story for a few years through his parents’ blog about his “movement disorder” (which turns out to be related to his incredibly rare condition, NGLY1 deficiency). Last week, Matthew Might co-authored a commentary with Matt Wilsey in the journal of the American College of Medical Genetics and Genomics: “The shifting model […]
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