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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

3 home health care hacks

March 20, 2014 By Susannah Fox 49 Comments

Two sets of hands sort pills into a pillbox

I recently spent an afternoon with a dear relative who is being treated for cancer. Her medication regimen is so complicated that my mom, an experienced caregiver, visits her daily to help sort all the different pills into all the various boxes (and make sure they get swallowed). They showed off three health care hacks […]

Filed Under: key people, peer-to-peer health care Tagged With: cancer, caregivers, home health care hacks

Extremely rare, incredibly typical

February 28, 2014 By Susannah Fox 5 Comments

After nearly 15 years tracking the cultural shifts happening at the intersection of health and the internet, I know a few things. #1 – don’t get between a parent and a piece of information he or she needs to make a decision about the health of a child. #2 – from 28.8 modems to the latest smartphones, […]

Filed Under: peer-to-peer health care Tagged With: Rare Disease

Hacking home health care

February 10, 2014 By Susannah Fox 57 Comments

King Arthur large baker's peel

We need to fix the “solved problems” crisis in home health care. Let me explain. At the start of Health Foo* in December, everyone introduced themselves in 6 words or less. Row by row, person by person, 100+ people talked in turn. In the back row, nearly the last to speak, Laura Baldwin stood and […]

Filed Under: end of life, key people, peer-to-peer health care Tagged With: #InventHealth, Alzheimers, caregivers, Health Foo, home health care hacks, Invent Health, Moebius Syndrome

The network is our superpower

January 20, 2014 By Susannah Fox 22 Comments

Justice League by roadkillbuddha on Flickr

My kids love to talk about superpowers — the ability to fly, to heal, to be in two places at once, or to have super-strength. We debate the merits of each one, which combinations we would choose if we could have two, etc. I’ve come to realize that I have a superpower. We all do. […]

Filed Under: peer-to-peer health care, social media Tagged With: Dan Fleshler, diabetesmine, Lisa Bonchek Adams

Oversharing is in the eye of the beholder

January 15, 2014 By Susannah Fox Leave a Comment

I got to quote Thomas Jefferson in an essay I wrote for the Pew Research Center’s FactTank blog today: “Who then can so softly bind up the wound of another as he who has felt the same wound himself?” It’s about Lisa Bonchek Adams and the spotlight that has been thrown on the use of […]

Filed Under: peer-to-peer health care Tagged With: #bcsm, peer-to-peer healthcare, Pew Research Center

The Lake Wobegon effect in health care — and how to fight it

January 3, 2014 By Susannah Fox 23 Comments

Humans have a tendency to overestimate our abilities and those of people we trust. It’s been called the Lake Wobegon effect, after a mythical place where “where all the women are strong, all the men are good looking, and all the children are above average.” It’s a punchline with a dark edge. Consider the following: According to […]

Filed Under: e-patient stories, ethics, peer-to-peer health care

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  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
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