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Susannah Fox

I help people navigate health and technology.

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peer-to-peer health care

Advancing clinical registries to support pandemic treatment and response

July 27, 2020 By Susannah Fox 23 Comments

Close up of fuzzy dandelion seeds

The biomedical research model has a blind spot. People living with a condition or disease are traditionally seen as passive sources of data, not active participants in the research. We as a society miss out on promising avenues of inquiry. It’s time to widen our lens. On August 12, I’ll moderate a discussion about how […]

Filed Under: health data, peer-to-peer health care Tagged With: Body Politic, British Medical Journal, Council of Medical Specialty Societies, COVID19, Emily Sirotich, flip teaching, Gary Wolf, Gina Assaf, Hannah Davis, Helen Burstin, LongCovid, patient registries, Quantified Self, rheumatoid arthritis

How peer-to-peer health advice can help people take their meds on time (and so much more)

July 15, 2020 By Susannah Fox 1 Comment

Two sets of hands sort pills into a pillbox

(Yes, it’s the third post in 5 days from me, but when you’ve got cool stuff to share, why wait?) Matthew Zachary‘s podcast, Out of Patients, is one of my favorites because he brings his whole self to health care discussions, as you’ll hear in our conversation. It was a pleasure to unpack my latest […]

Filed Under: peer-to-peer health care Tagged With: #health2con, Amy Tenderich, Atul Gawande, Brene Brown, InquisitHealth, Institute for Healthcare Improvement, Invent Health, Matthew Zachary, patientslikeme, PillPack, podcasts, Tom Ferguson

Tracking the trackers

May 13, 2020 By Susannah Fox 25 Comments

In Dark Times Shine Your Light Brighter

UPDATE: On August 12, I’ll moderate a discussion about prioritizing patient engagement and inclusion of patient-generated COVID-19 data in clinical registries. It is being offered free and open to the public. Read a preview post and register here for the webinar. Every day I see a new example of a survey or other tool to […]

Filed Under: health data, participatory research, patient networks, peer-to-peer health care, research issues Tagged With: 23andme, Ancestry, Body Politic, COVID19, cystic fibrosis, Health Data, Open Humans Foundation, patient registries, patientslikeme, Webmd

Pandemic problem-solving

April 29, 2020 By Susannah Fox 9 Comments

Hands feed fabric into a sewing machine

The COVID19 pandemic is forcing everyone to learn new skills on the fly.  Clinicians are teaching each other how to hotwire a ventilator to serve more than one patient.  People are 3D printing spare parts for medical equipment and learning how to sew protective masks. Parents are sharing strategies for convincing their teenagers to stay home – and […]

Filed Under: peer-to-peer health care Tagged With: COVID19, maker movement, peer-to-peer healthcare

Surviving a pandemic like an artist

April 14, 2020 By Susannah Fox 9 Comments

Snow covered mountains with text reading: Life is so bizarre it must be a bad dream

Through her work as a film-maker, Maggie Whittum helps the rest of us make sense of this upside-down world we find ourselves in. And she reminds us that, unfortunately, this disorientation is familiar to people who survive stroke. Andrew Simonet, founder and director of Artists U, recently wrote an essay entitled, “This is What We […]

Filed Under: beauty and wonder, peer-to-peer health care Tagged With: Andrew Simonet, art, COVID19, Maggie Whittum, stroke

Why entrepreneurs should listen to patients & caregivers

April 9, 2020 By Susannah Fox 1 Comment

Screenshot of Harvard Business Review article about how chronic disease patients are innovating together online

I am thrilled to share this excerpt from the Harvard Business Review article I wrote, “How Chronic-Disease Patients Are Innovating Together Online”: The internet gives us virtually unlimited access to each other. That deceptively simple insight is an untapped opportunity in health care. When companies are searching for their next idea, they should look to […]

Filed Under: peer-to-peer health care, social media Tagged With: Christopher Snider, Chronic Conditions, chronic disease, Dana Lewis, HopeLab Foundation, innovation, Vicky Rideout, Well Being Trust

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Thank you, Nina! When my loved one and I were forging our care relationship one of my stipulations was that…” Oct 26, 16:28
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  • Alex on Wow! How? Psychedelic Outlaws: “This is such a thoughtful article — I especially appreciated the way you connected the science with real-world experiences. In…” Oct 26, 01:32

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