How might we empower people to participate in research about their own diseases or conditions? Which models work best for organizations solving medical mysteries or improving care for those living with rare conditions? These are two of the questions raised by a New York Times story today: “His doctors were stumped. Then he took over,” by Katie Thomas […]
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The Value of Data
Health care is in danger of missing the point. (A repost from 2014 that’s relevant today thanks to announcements at HIMSS.) In 1999, when I was the editor of USNews.com, the dot-com boom was in full swing. Money seemed to be gushing out of the Bay Area and some sharpies at U.S.News saw an opportunity […]
Imagining better outcomes for T1D with #MakeHealth
This post originally appeared on Diabetes Mine. Forty-five makers, thinkers, designers and doers gathered in Cincinnati for a two-day meeting to kick off “Phase Zero” of a new initiative to imagine a new system of care for people living with Type 1 diabetes (T1D). The best way I can describe the group is that everyone […]
What if we stopped panicking and started solving the problem?
“What if, in the midst of a crisis in which workflows, policies, procedures, and operations must be altered, the Centers for Disease Control and Prevention (CDC) could distribute an app to emergency departments as easily as a software developer submits an app to the Apple App Store?” – Kenneth D. Mandl, MD, MPH, talking so much sense about […]
Let’s fix the culture of stress
The Unmentionables panel at Health 2.0 addressed issues we don’t talk about in public but which deeply affect our health and well-being. I posted the first set of videos last week — here is the second batch. Michael Painter, of the Robert Wood Johnson Foundation, talked about his personal perspective on stress and building a culture […]
Medicine fails, patient is frustrated: Google
Jessica Hagy is one of my favorite social commentators, so I was thrilled to meet her in person at the 2010 Mayo Transform conference, curated by David Rosenman. Here is one of her cartoons from that event: I have shared the image on Twitter a few times, including today, when I wrote that I’d add […]
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