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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

3 articles worth your time

July 3, 2013 By Susannah Fox 3 Comments

Here are three articles spinning around in my head today: A Letter to Patients With Chronic Disease – written by Rob Lamberts, MD, in 2010, tweeted this morning by Ronan Kavanagh, MD. Key quote: “So when you approach a doctor – especially one you’ve never met before – you come with a knowledge of your disease […]

Filed Under: e-patient stories, key people, net-friendly docs, pts as teachers, research issues Tagged With: #whatifhc

“There are four kinds of people in this world…”

July 1, 2013 By Susannah Fox 2 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

“…those who have been caregivers, those who currently are caregivers, those who will be caregivers, and those who will need caregivers.” – Rosalyn Carter, quoted in a lovely post by Kathleen Hoffman: “Be Kind Whenever Possible…” I’m continuing to hear from people about the new caregivers report, via tweets, blog comments, and email. Thank you for […]

Filed Under: end of life, key people Tagged With: caregivers, Jessica Hagy

Love made visible

June 23, 2013 By Susannah Fox 31 Comments

Terra cotta soldiers, photograph by O. Louis Mazzatenta

As an anthropology major in college, I was required to take at least one course in archaeology. We studied burial mounds and earthworks (from afar, no digging) and it reminded me of Geology 101, when I learned how scientists spot patterns in the physical landscape. Geologists look for clues to the Earth’s past, and possible […]

Filed Under: demographics, end of life Tagged With: california healthcare foundation, caregivers, Pew Internet, Pew Research Center

Beyond one more search, one more prayer

June 10, 2013 By Susannah Fox 3 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

I had lunch today with Mona Hanford, who shared her vision for helping people navigate to the end of life, based on her own experience as a caregiver for her husband. Our conversation led us to the observation that caregivers often feel like they have to keep fighting on behalf of their loved one. If […]

Filed Under: end of life Tagged With: caregivers, end of life

Health Datapalooza IV

June 2, 2013 By Susannah Fox Leave a Comment

I will be part of a panel on self-tracking at the Health Datapalooza in Washington, DC, on Tuesday. My fellow panelists include Naveen Selvadurai, a co-founder of Foursquare; Roger Magoulas, the director of market research at O’Reilly Media; Jodi Daniel, director of the Office of Policy and Planning at the Office of the National Coordinator for Health Information Technology; and Abdul Shaikh of National Cancer Institute’s Health Communication and […]

Filed Under: positive patterns Tagged With: Health Datapalooza, Quantified Self, self-tracking, Tracking for Health

Caregivers, please share your stories

May 28, 2013 By Susannah Fox 16 Comments

The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a neighbor, either now or in the past, please […]

Filed Under: end of life, hc's problem list, key people, peer-to-peer health care Tagged With: AARP, Alzheimers, caregivers, National Family Caregivers Association

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Recent Comments

  • Susannah Fox on Lessons learned about hospice care: “Zoe, thank you for the unvarnished comment! We need to go into end of life with our eyes open in…” Aug 5, 14:20
  • Zoe on Lessons learned about hospice care: “I despise home hospice and the entire industry can kiss my ass. I was duped into caring for my dying…” Aug 5, 03:45
  • Susannah Fox on Lessons learned about hospice care: “Thank you for sharing!” Jul 30, 12:46

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