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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Love made visible

June 23, 2013 By Susannah Fox 31 Comments

Terra cotta soldiers, photograph by O. Louis Mazzatenta

As an anthropology major in college, I was required to take at least one course in archaeology. We studied burial mounds and earthworks (from afar, no digging) and it reminded me of Geology 101, when I learned how scientists spot patterns in the physical landscape. Geologists look for clues to the Earth’s past, and possible […]

Filed Under: demographics, end of life Tagged With: california healthcare foundation, caregivers, Pew Internet, Pew Research Center

Beyond one more search, one more prayer

June 10, 2013 By Susannah Fox 3 Comments

Black and white image of two hands, clasped. One person is wearing a hospital ID bracelet.

I had lunch today with Mona Hanford, who shared her vision for helping people navigate to the end of life, based on her own experience as a caregiver for her husband. Our conversation led us to the observation that caregivers often feel like they have to keep fighting on behalf of their loved one. If […]

Filed Under: end of life Tagged With: caregivers, end of life

Health Datapalooza IV

June 2, 2013 By Susannah Fox Leave a Comment

I will be part of a panel on self-tracking at the Health Datapalooza in Washington, DC, on Tuesday. My fellow panelists include Naveen Selvadurai, a co-founder of Foursquare; Roger Magoulas, the director of market research at O’Reilly Media; Jodi Daniel, director of the Office of Policy and Planning at the Office of the National Coordinator for Health Information Technology; and Abdul Shaikh of National Cancer Institute’s Health Communication and […]

Filed Under: positive patterns Tagged With: Health Datapalooza, Quantified Self, self-tracking, Tracking for Health

Caregivers, please share your stories

May 28, 2013 By Susannah Fox 16 Comments

The Pew Research Center will release a new report about caregivers in June. As we prepare, I’m looking for stories to share with reporters so they can better understand the context for our data. If you have experience caring for a family member, a friend, or a neighbor, either now or in the past, please […]

Filed Under: end of life, hc's problem list, key people, peer-to-peer health care Tagged With: AARP, Alzheimers, caregivers, National Family Caregivers Association

Work on stuff that matters: health care edition

May 24, 2013 By Susannah Fox 7 Comments

Frog in a pot of water

That’s a Tim O’Reilly maxim, not original to me. I quoted it, exasperated, after reading this article: The biggest merger you didn’t hear about yesterday If you haven’t read it yet, please do. It is damn good and damn right. Sorry. It’s just that I feel like the frog in the pot who just saw the […]

Filed Under: hc's problem list, social media

Have you ever wondered what it’s like to have Cystic Fibrosis?

May 22, 2013 By Susannah Fox Leave a Comment

Erin Moore, the mom-warrior who created that video, also wrote this essay: Are patients a distraction? I think not… Watch, read, cry, be inspired. I sure am.

Filed Under: e-patient stories Tagged With: caregivers, cystic fibrosis

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