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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Hands-free, offline, dreaming

August 7, 2014 By Susannah Fox Leave a Comment

Boy on a carnival swing - no hands - photo by Susannah Fox

I’ll be mostly offline for the next couple of weeks. See you then!

Filed Under: beauty and wonder

Break my heart, make me change

August 1, 2014 By Susannah Fox 19 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

Take a deep breath and then look at this data about HIV in the U.S.: I have seen these numbers before, but never laid out so clearly and so beautifully. Thank you, Jeff Guo of the Washington Post, for breaking my heart. Thank you, because I think we all need our hearts broken anew from […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: #whatifhc, AIDS.gov, Bedsider, Black Lives Matter, HIV/AIDS, Kicesie Drew, peer-to-peer healthcare, Pew Research Center, Vic Strecher

Who is ready to stand naked in front of the mirror of data?

July 29, 2014 By Susannah Fox Leave a Comment

In this talk at the Quantified Self Public Health symposium, I argue that we must respect the context of people’s lives while designing health interventions, tools, and research projects. Not everyone is ready to stand naked in front of the bright light of numbers on a screen. Let’s be gentle in our approach, especially to […]

Filed Under: health data, trends & principles Tagged With: california healthcare foundation, caregivers, chronic disease, Google Poetics, Health Data, Pew Research Center, QSPH, Quantified Self, Robert Wood Johnson Foundation, self-tracking, Tracking for Health

Medicine fails, patient is frustrated: Google

July 22, 2014 By Susannah Fox 9 Comments

Medicine fails, patient is frustrated: Google - by Jessica Hagy

Jessica Hagy is one of my favorite social commentators, so I was thrilled to meet her in person at the 2010 Mayo Transform conference, curated by David Rosenman. Here is one of her cartoons from that event: I have shared the image on Twitter a few times, including today, when I wrote that I’d add […]

Filed Under: hc's problem list, social media Tagged With: David Rosenman, Jessica Hagy, Mayo Clinic, Mayo Transform

I’m leaving Pew Research

July 17, 2014 By Susannah Fox 84 Comments

Believe it or not, 14 years ago, the idea of using the internet for health was a novel concept. That’s when Pew Internet published its first report about the social impact of the internet on health and health care, raising eyebrows across the U.S. Our data was cited in mainstream news outlets, in JAMA, and, […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: california healthcare foundation, Pew Charitable Trusts, Pew Internet, Pew Research Center, Robert Wood Johnson Foundation, Thomas Goetz, Tom Ferguson

How did we get here? And where are we going?

July 15, 2014 By Susannah Fox 17 Comments

The Vasa, which sank on its maiden voyage in 1628

Video of my talk in Sweden is now online (skip to minute 7 unless you speak Swedish): It’s a comprehensive summary of my research so far, as well as an argument for listening to patients and caregivers as we move forward into the future. I opened with an example that was inspired by a visit […]

Filed Under: participatory research, patient networks, peer-to-peer health care, trends & principles Tagged With: C3N Project, cystic fibrosis, patientslikeme, peer-to-peer healthcare, Pew Internet, Pew Research Center, scurvy, Sweden, video

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