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Susannah Fox

I help people navigate health and technology.

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Susannah Fox

Case study: One in a million diagnosis

June 29, 2018 By Susannah Fox 19 Comments

Screen shot of peer health advice video

When we get sick or face a new challenge in our lives, we often feel alone, but we shouldn’t. There are people who have been in the same situation and are eager to help if they only knew how to find us. That’s one of my core beliefs, based on the fieldwork and research I’ve […]

Filed Under: peer-to-peer health care Tagged With: case study, EURORDIS, Matt Might, National Organization For Rare Disorders, NIH, Rare Disease, rare diseases

Clinical trials jump on the Cluetrain

June 22, 2018 By Susannah Fox 6 Comments

Man rushes toward a modern train

When the organizers of a National Cancer Institute workshop on social media and clinical trials invited me to speak, they said: We have an ethical obligation to understand social media. Social media is not just trendy. It’s a tool, an opportunity to act in an ethical way, not only to increase recruitment but to help […]

Filed Under: research issues, social media, trends & principles Tagged With: Cluetrain Manifesto, national cancer institute, Pew Internet, Pew Research Center, social media

Public Q&A: Avoiding burnout

May 9, 2018 By Susannah Fox 9 Comments

Two lane highway stretches out ahead with the sun blazing down

How do you avoid professional burnout? Two clinician friends of mine recently shared their divergent paths: one is starting a company, the other is taking a sabbatical. Since avoiding extreme, chronic stress is a challenge that I hear about a lot I thought I’d share my advice for each of them and ask for community input. […]

Filed Under: public Q&A Tagged With: Andre Blackman, Bryan Vartabedian, David Shaywitz, Guy Raz, Lisa Suennen, podcasts, Sasha Shillcutt, Stefan Sagmeister

If we give people access to the tools they need to solve problems, they will

March 28, 2018 By Susannah Fox 3 Comments

A woman building an device by hand

One of my core beliefs is that if we give people access to the data, information, and tools they need to solve their own problems, they will. The Maker movement is an example of a group of people who embody this idea. They modify and improve the world around them. They look at a problem and not only say, […]

Filed Under: positive patterns, trends & principles Tagged With: #InventHealth, George Hacks, Invent Health, maker movement, Stanford Medicine X

How to judge an innovation

March 21, 2018 By Susannah Fox 11 Comments

A drawing of a lightbulb with a stethoscope appears next to the words George Hacks

Update: George Hacks is being held again this year, January 26-27, 2019. I’ll serve as a judge once again and I can’t wait to see what students come up with! George Hacks is a medical and assistive device hackathon happening this weekend in Washington, DC. The students organizing the event have done a stellar job recruiting […]

Filed Under: hc's problem list, positive patterns Tagged With: #InventHealth, #makehealth, George Hacks, home health care hacks, Invent Health, maker movement, prize competitions

The Rise of the New Bio-citizen

March 11, 2018 By Susannah Fox 4 Comments

Over the next two days, I’ll be part of a group convened by Eleonore Pauwels and Todd Kuiken to discuss barriers to citizen-driven biomedical research. If you are intrigued, read the report, “The Rise of the New Bio-citizen,” which lays out how people “are pursuing a range of activities from analyses of genomic data for […]

Filed Under: participatory research, peer-to-peer health care, policy issues, research issues Tagged With: Anna McCollister-Slipp, Eleonore Pauwels, Invent Health, Matt Might, patient activation, peer-to-peer healthcare, Rare Disease, Todd Kuiken, Tracking for Health

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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