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Susannah Fox

I help people navigate health and technology.

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Archives for August 2018

Blue Button’s North Star

August 23, 2018 By Susannah Fox Leave a Comment

Red Stop sign with stickers, so it reads: DON'T STOP BELIEVING

Blue Button is a Trojan horse for culture change in the American health care system. It places power in the hands of patients and whets the data appetites of millions of Americans and the companies who would like to serve them. If you’ve never heard of Blue Button, here’s a quick overview: The federal government […]

Filed Under: health data, medical records, policy issues, positive patterns Tagged With: Blue Button, FHIR, Hhs, Mark Scrimshire, Markle Foundation, Medicare, VA, veterans, White House

A health & technology pioneer learns that joy, even in illness, doesn’t have an age limit

August 13, 2018 By Susannah Fox 10 Comments

Woman holds her hands in the shape of a heart

The following is a cross-post from the Atlas of Caregiving blog, which is featuring a new series of “caring conversations” with people who connect their professional experience to their caregiving experience. Susannah Fox advises companies and nonprofits on how to navigate the intersection of health and technology. She recently served as the Chief Technology Officer […]

Filed Under: e-patient stories, key people Tagged With: Atlas of Caregiving, Blue Button, caregivers, Family Caregivers, Hope for Henry, Laurie Strongin

Peer health advice among teens and young adults

August 6, 2018 By Susannah Fox 4 Comments

Woman looks at her phone, hair covering her face

Six years ago, the last time I had the opportunity to measure it, a Pew Research survey found that about two in ten U.S. adults have gone online to find people who might have health concerns similar to theirs. Now, in a report we published on July 31, a Hopelab/Well Being Trust survey of 14- to […]

Filed Under: demographics, peer-to-peer health care Tagged With: HopeLab Foundation, Peer To Peer, peer-to-peer healthcare, teens, Vicky Rideout, Well Being Trust

Teens and young adults:
In their own words

August 2, 2018 By Susannah Fox Leave a Comment

I like to look at what my friends are doing. It makes me happy to see them being happy. Takes my mind off my troubles and stress.

The Hopelab/Well Being Trust report is based on a nationally-representative online survey which we designed to have as many open-end questions as we could squeeze into it. We were overwhelmed (in a good way) with the responses. Hundreds of teens and young adults shared vignettes about how they are managing their health, both physical and emotional, using mobile […]

Filed Under: social media, trends & principles Tagged With: social media, teens

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Recent Comments

  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33
  • Samantha Bridge on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Great conversation. It has been my experience as a nurse to have the conversation before the testing. What is the…” May 4, 09:05
  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12

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