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Susannah Fox

I help people navigate health and technology.

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Giving Tuesday: The Walking Gallery Center for Arts and Healing

December 1, 2014 By Susannah Fox 4 Comments

On this Giving Tuesday, consider donating money to support Regina Holliday’s latest project: The Walking Gallery Center for Arts and Healing.

Filed Under: beauty and wonder Tagged With: Regina Holliday, The Walking Gallery

We are all fellow travelers (even if we don’t look sick)

November 22, 2014 By Susannah Fox 14 Comments

Crowd at airport

Inspired by a call for essays about e-patient travel stories:  There is an unspoken code at airport gates. Don’t touch me. Don’t touch my stuff. Don’t step in front of me unless you have a heck of a good reason, especially if I got here before you did. We mark out our territory and imperceptibly […]

Filed Under: others' e-patient stories Tagged With: mitochondrial disease

Save us, Facebook

November 20, 2014 By Susannah Fox 24 Comments

Erin and Drew

The Reuters story about Facebook taking its “first steps into healthcare” read like an announcement that Las Vegas was getting into entertainment or that New York City was getting into fashion. Extraordinary health communities have grown up between the cracks of Facebook’s platform. It’s just that up until now executives publicly looked the other way. […]

Filed Under: e-patient stories, peer-to-peer health care Tagged With: cystic fibrosis, Erin Moore, Facebook, Inspire, mitochondrial disease, patientslikeme, Smart Patients

Public Q&A: How to support an introvert in an increasingly connected world?

November 13, 2014 By Susannah Fox 31 Comments

All signs point to a social revolution in health. As I’ve put it, the internet gives us access not only to information, but also to each other. Crucial advice can come from a just-in-time someone-like-you as well as from a clinician. So what happens to people who are shy or introverted? If sharing and learning […]

Filed Under: e-pts resources, end of life, patient networks, peer-to-peer health care, public Q&A

The Teal Pumpkin Project

November 12, 2014 By Susannah Fox 10 Comments

I live (mostly) by Michael Pollan’s advice to “eat all the junk food you want as long as you cook it yourself.” But Halloween is an exception. We live in a Sesame Street-like townhouse neighborhood in Washington, DC, so my kids can easily hit 100 houses while trick-or-treating. The candy haul is epic. My food-allergic child has […]

Filed Under: positive patterns, social media Tagged With: food allergy

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Liz, thank you for sharing this comment! I’m sorry for your loss and the experience you went through. Thank you…” Jul 4, 12:05
  • Liz on Rare Disease in the NYT: “The author’s willingness to grapple with her competing instincts is admirable. As a former “medical mom,” I found the peer-connection…” Jul 1, 21:46
  • Carrie Kimmell on Case study: Trevor’s disease: “Hi Jill – currently Brandon is walking without a limp (he is almost 15 now). He was going to undergo…” Jun 5, 14:07

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