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Susannah Fox

I help people navigate health and technology.

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Quality Improvement

Public Q&A: Patient registries

March 9, 2020 By Susannah Fox 17 Comments

A community colleague asked for advice about how an organization can boost the signal for their patient registry. Recruitment levels are not what they expected and nowhere near what they need. I’m sharing what I wrote back so that others can chime in with their advice in the comments. First, look at what successful registries […]

Filed Under: health data, patient networks, public Q&A, research issues Tagged With: All of Us, cystic fibrosis, Erin Moore, ImproveCareNow, John Wilbanks, NIH, patient registries, Quality Improvement

The silver lining of jury duty

February 12, 2018 By Susannah Fox 3 Comments

US Constitution by Jonathan Thorne on Flickr

Imagine taking a 7-hour flight on a low-budget airline every day for 5 weeks, sitting elbow to elbow with the same 22 people, listening to fragments of some of the most violent, upsetting stories you have ever heard. That was my experience of grand jury duty in Washington, DC. I tried to sit quietly and endure. […]

Filed Under: positive patterns Tagged With: civic duty, Peer To Peer, Quality Improvement, Washington DC

Public Q&A: How do you know when you are heading in the right – or wrong – direction?

December 12, 2014 By Susannah Fox 16 Comments

Here’s a question I received recently: What kinds of indicators tell you if you are going in the right — or wrong — direction in your work? I decided to answer it here, as a public Q&A, because it merits crowd-sourcing.

Filed Under: positive patterns, public Q&A Tagged With: failure, Hunter Gatewood, Mike Evans, Quality Improvement

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