A community colleague asked for advice about how an organization can boost the signal for their patient registry. Recruitment levels are not what they expected and nowhere near what they need. I’m sharing what I wrote back so that others can chime in with their advice in the comments. First, look at what successful registries […]
John Wilbanks
“Privacy leaves the room when cancer enters.”
– John Wilbanks talking about unintended consequences of informed consent. Read a summary of his talk and a clarification.
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