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Susannah Fox

I help people navigate health and technology.

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“They come from the same community”

June 13, 2017 By Susannah Fox 3 Comments

Long fingers circling a wrist

I often share links on Twitter, but without the context I’d love to give to each one. A few recent stories of the power of peer connection around health and well-being: Washington Post: Butterfly babies : A rare disease makes these young girls’ skin break and peel at the slightest touch, like a butterfly’s wings As […]

Filed Under: peer-to-peer health care Tagged With: Flickr, India, mental health, npr, peer counseling, Rare Disease, rare diseases, Washington Post, Youtube

Case study: Brain surgery

April 25, 2017 By Susannah Fox 36 Comments

Plastic models of the human brain sit on shelves

We have a “last mile” problem in patient communities. In the first post of this series, I asked for general advice about finding your people — the peers who could give you advice about your health condition and answer even your most secret questions. Now I’d like to focus on how someone would approach getting […]

Filed Under: patient networks, peer-to-peer health care Tagged With: Brain Tumor, case study, peer-to-peer healthcare, surgery

How did you find your people?

April 17, 2017 By Susannah Fox 33 Comments

The internet gives us access not only to information, but also to each other. That deceptively simple insight, gained from years of research, contains so much of the hope I have for the future of health and health care. When we get sick or receive a new diagnosis, we often feel alone, but we shouldn’t. […]

Filed Under: peer-to-peer health care Tagged With: ACOR, ALS, cancer, cystic fibrosis, Danny Sands, E-Patient Dave, Emily Kramer-Golinkoff, patientslikeme, peer-to-peer healthcare, Smart Patients

The online health revolution (it’s not too late to jump in)

April 11, 2017 By Susannah Fox 4 Comments

Thanks to Joyce Lee, MD, for resurfacing this talk on Twitter today! In watching it again, I’m struck by how the data needs to be updated, but the insights don’t. Clinicians have not yet missed their chance to contribute to the online health revolution (nearly 4 years later)! The tools are going to change, but what […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: Clinicians, Pew Internet

DIY innovation in the hospital

March 27, 2017 By Susannah Fox 1 Comment

My grandfather, Frank H.J. Figge, was a cancer researcher who faced shortages during World War II and had to improvise to keep his lab going. When he ran short of quartz lenses he remembered hearing that plastic also transmits ultraviolet rays and filled synthetic sausage casings with water to create a perfect — much cheaper — substitute. Nurses have […]

Filed Under: key people Tagged With: home health care hacks, innovation, Lemelson Center, maker movement, nurses

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Thank you, Nina! When my loved one and I were forging our care relationship one of my stipulations was that…” Oct 26, 16:28
  • Nina Mayes on Caregiver Survival Guide: “To my fellow caregivers: Give yourself permission to ask for help. Give yourself permission to receive help. Be relentless about…” Oct 26, 15:36
  • Alex on Wow! How? Psychedelic Outlaws: “This is such a thoughtful article — I especially appreciated the way you connected the science with real-world experiences. In…” Oct 26, 01:32

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