I’ve been thinking about how people react to a crisis. How, if we are lucky, we find ways to lend and borrow expertise to get through it. And how we lend and borrow courage. In the American South, there is something called the Cajun Navy, an ad hoc, informal group of people who use their […]
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A deep dive into food allergy research and education
Longtime followers of this blog know I believe in the power of peers, particularly among people living with rare conditions, and may also know that I am a food-allergy mom. This past weekend I had the chance to attend the annual conference for my rare community, FAREcon, and drink from the peer advice well. Warning: This […]
The Great Now What
Today is World Stroke Day. With this post I’m amplifying the work that Maggie Whittum and her team are doing to raise awareness of the following: 15 million people suffer a stroke each year worldwide. Stroke is the #4 killer and the #1 cause of long-term disability in the U.S. There are over 7 million […]
Data as an engine of disruption in health care
Continuing my practice of “flipping” an event — posting what I hope to get across in advance in order to jump start the conversation — here is a preview for a panel set to take place on Oct. 23. My co-panelists (Iya Khalil, Deborah Kilpatrick, and Don Rucker) and I will talk about data as an engine […]
Linking & Amplifying User-centered Networks through Connected Health (L.A.U.N.C.H.)
Continuing my practice of “flipping” an event — posting what I hope to get across in advance in order to jump start the conversation, here is a preview for a panel set to take place at 12pm on Friday, Oct. 19, in Boston. One of the maxims I carry with me into every meeting and […]
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