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Susannah Fox

I help people navigate health and technology.

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Why I (finally) signed up for health data access

January 17, 2020 By Susannah Fox 8 Comments

Peas and pods on cutting board

Christine Bechtel, Lygeia Ricciardi, Dave deBronkart, Casey Quinlan, and Donna Cryer published an article in Health Affairs this week: “Why Aren’t More Patients Electronically Accessing Their Medical Records (Yet)?” Please click through and read it — it’s open access.  Being a health geek, I read footnotes and every link in this article is worth your time. Bechtel […]

Filed Under: health data, medical records, peer-to-peer health care Tagged With: Casey Quinlan, Christine Bechtel, Courtney Lyles, Donna Cryer, E-Patient Dave, food allergy, Health Affairs, Julia Adler-Milstein, Lygeia Ricciardi, Sunny Lin, Urmimala Sarkar

How to make 10 million discoveries

January 11, 2020 By Susannah Fox Leave a Comment

Wave Group Photo by Michael Cannon on Flickr

When people’s questions go unanswered, they don’t stop asking them. They turn to Dr. Google and other sources. They try to solve their own mysteries, using whatever they can find. This is an opportunity that some people misread as dangerous or wrong. How might we help more people contribute to discovery of new treatments or […]

Filed Under: key people, participatory research, research issues Tagged With: Gary Wolf, Quantified Self

Mystery solved. Again.

January 7, 2020 By Susannah Fox 13 Comments

A man sits alone in a lifeboat saying to himself, "I feel so alone. There's no one out there like me."

Friends, I have yet another so-extraordinary-it’s-ordinary story of peer-to-peer health care to share. Andrew Wilkinson wrote on Twitter: A few months ago, as a last ditch effort, I posted on Twitter about the horrible acid reflux which I’d been suffering from for almost 10 years. I had tried just about everything. Proton pump inhibitors, dietary […]

Filed Under: Networkers, peer-to-peer health care, Seekers, social media Tagged With: peer-to-peer healthcare, Twitter

Public Q&A: conference organizing

December 2, 2019 By Susannah Fox 2 Comments

Huge conference hallway

A friend asked me to share some of my tips about how to organize a useful, comfortable, inclusive health care conference. Meeting planning is not what I do for a living, but since I attend about a dozen events each year, I’ve captured quite a few observations about how to create a great experience for […]

Filed Under: public Q&A Tagged With: california healthcare foundation, conferences, food allergy, Stanford Medicine X

What I’m reading and admiring…

November 18, 2019 By Susannah Fox 5 Comments

Decorative: blue gossamer

Here are the open tabs on my browser right now: Networks and Pickup Basketball, by Eugene Eric Kim. I’m always looking for images and metaphors to help people understand complex ideas — this is a powerful (and fun) one. Kim explores the infrastructure and protocols of decentralized, open systems that allow for creativity while discouraging […]

Filed Under: key people, positive patterns Tagged With: Eric von Hippel, Eugene Eric Kim, Invent Health, Jordan Reeves, Wendy Sue Swanson

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Recent Comments

  • Susannah Fox on Caregiver Survival Guide: “Great question! When the downhill run toward discharge began for Mitsuru, he had been in the hospital for about 10…” Oct 23, 10:46
  • Dave deBronkart on Caregiver Survival Guide: “As I age and see my lifelong peers start to decline, this brings tears to my eyes. Thank you again.…” Oct 22, 10:17
  • Susannah Fox on Patient Input on Clinical Trials: “Great question, thank you! My impression is that our best bet is to make it appeal to study sponsors as…” Oct 17, 10:26

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