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Susannah Fox

I help people navigate health and technology.

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What I’m reading and admiring…

November 18, 2019 By Susannah Fox 5 Comments

Decorative: blue gossamer

Here are the open tabs on my browser right now: Networks and Pickup Basketball, by Eugene Eric Kim. I’m always looking for images and metaphors to help people understand complex ideas — this is a powerful (and fun) one. Kim explores the infrastructure and protocols of decentralized, open systems that allow for creativity while discouraging […]

Filed Under: key people, positive patterns Tagged With: Eric von Hippel, Eugene Eric Kim, Invent Health, Jordan Reeves, Wendy Sue Swanson

What’s your advice?

November 12, 2019 By Susannah Fox 19 Comments

Arrows connect Give and Take; a bracket shows that Care encompasses both.

My dad was a survivor — of a heart attack in his 50s, kidney cancer in his 60s, and an initial diagnosis of melanoma in his 70s. Melanoma recurrence and complications of treatment are what finally got him. A lifelong runner, Dad kept meticulous notes about his mileage and heart rate on paper. He bought […]

Filed Under: health data, peer-to-peer health care Tagged With: cancer, caregivers, family, Tracking for Health

Cheese, whisky, and health data

October 14, 2019 By Susannah Fox 4 Comments

cheddar cheese being sliced by a sharp knife

Here’s how I’ve been talking about health data interoperability recently, with an appeal to people’s patriotism (and their appetites): At the start of the video, I thank Mona Siddiqui, MD, for her service as the Chief Data Officer at the U.S. Department of Health and Human Services. To learn more about her portfolio, check out […]

Filed Under: health data, policy issues Tagged With: Cambia Health Solutions, data liberation, Health Data, Hipaa, Hugo Campos, medical devices

Sunflowers turn to each other for help

October 8, 2019 By Susannah Fox 9 Comments

Sunflowers with a bee

Sunflowers have always been my favorite flower and now I know why: They turn to each other for help. Image: My backyard sunflower patch at its midsummer height (I gave up on growing vegetables this year and reaped a crop of beauty instead).

Filed Under: beauty and wonder, peer-to-peer health care Tagged With: sunflowers

Why should anyone care about health data interoperability?

September 16, 2019 By Susannah Fox 6 Comments

Medical records closes at 5pm on Friday by Regina Holliday

A question I hear quite often, sometimes whispered, is: Why should anyone care about health data interoperability? It sounds pretty technical and boring. If I’m talking with a “civilian” (in my world, someone not obsessed with health care and technology) I point out that interoperable health data can help people care for themselves and their families […]

Filed Under: health data Tagged With: Amazon, Clinical Trial Data, FHIR, Health Data Rights, Hugo Campos, medical devices

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Recent Comments

  • Susannah Fox on Jean Nidetch, Rebel Health leader: “Yes! I have enjoyed learning more about her personal story, which is a parable of midcentury feminism. WW was a…” May 9, 10:10
  • barbara figge fox on Jean Nidetch, Rebel Health leader: “Jean Neditch helped so many of us! She changed the landscape for weight reduction by leveraging peer support.” May 9, 08:11
  • Susannah Fox on Public Q&A: “I received scary test results. What questions should I ask my clinician?”: “Thanks, Samantha! I love your signature line/bona fides list — you tick the boxes for “learned and loved experience” described…” May 6, 15:33

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