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Susannah Fox

I help people navigate health and technology.

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Pew Internet

Rare Disease in the U.S. 2025

February 25, 2025 By Susannah Fox Leave a Comment

Two zebras

Rare disease communities welcomed me as a researcher, inspired me to highlight their ingenuity in my book, Rebel Health, and now I am honored to share results from the first probability-based national survey to measure the rare disease population. I partnered with my former Pew Research colleague Kristen Purcell, now at SSRS, to write the […]

Filed Under: peer-to-peer health care, trends & principles Tagged With: ARCHANGELS, artificial intelligence, ChatGPT, Gemini, peer-to-peer healthcare, Pew Internet, Pew Research Center, Rare Disease, Rebel Health, SSRS, telehealth

Acceptable uses of health data

November 23, 2020 By Susannah Fox 4 Comments

Cat peering out from under a computer keyboard

My former colleagues at the Pew Research Center continue to publish the best research on the impact of the internet on American society, bar none. My fandom extends to creating a fact sheet summarizing their recent surveys about Americans’ data worries. The results are indications about what people think and feel about the shifting technology […]

Filed Under: health data Tagged With: FasterCures, fitness, Pew Internet, Pew Research Center, self-tracking, social media, Tracking for Health

Credible, useful, helpful, trustworthy

November 16, 2020 By Susannah Fox 6 Comments

Sandhill cranes taking flight at sunrise

Inspired by a conversation with my FasterCures colleagues, I began looking into survey data related to trust and credibility, particularly: What entities and resources do people turn to when they need advice about important topics? Edelman, a global communications firm, has been measuring trust and credibility for 20 years. Their most recent Trust Barometer asked […]

Filed Under: peer-to-peer health care Tagged With: diabetes, Edelman, FasterCures, Pew Internet, Pew Research Center, Tom Ferguson, Trustworthiness

How might we push power out to the edges of the network?

January 24, 2020 By Susannah Fox Leave a Comment

Oak tree leaves budding

Cambia Health Solutions’ podcast, HealthChangers, invited me to share a few lessons learned, both personally and professionally. Listen in or read the transcript (below): Leslie Constans: One of the things I wanted to kick off our conversation with was finding out a little bit about this idea of working at the intersection of health and technology […]

Filed Under: health data, public Q&A Tagged With: Cambia Health Solutions, caregivers, HopeLab Foundation, Pew Internet, Pew Research Center, Well Being Trust

Fact sheet: U.S. teens and adults at the intersection of health and technology

February 11, 2019 By Susannah Fox 1 Comment

Group of people in front of huge screen of numbers

In an earlier post I shared the history of the “fact sheets” I maintain about health and technology. I thought I’d share a few highlights from the grandmother of them all — key data points on U.S. teens and adults and their use of technology to pursue health. It is the first one I created when I […]

Filed Under: demographics Tagged With: digital divide, fact sheets, internet access, peer-to-peer healthcare, Pew Internet, social media, teens

Helping people find the needle in a data haystack

January 14, 2019 By Susannah Fox 8 Comments

Needle in haystack by Madhavi Kuram on Flickr

One of the most important customer-service lessons I ever learned was from E-patient Dave: when it comes to disseminating research, give people what they need, not what you want to create. About a decade ago, Dave was on deadline to turn in slides for a presentation. He needed one key survey finding to illustrate a […]

Filed Under: demographics, research issues, social media, trends & principles Tagged With: fact sheets, HopeLab Foundation, Pew Internet, Pew Research Center, social media, survey, teens, Vicky Rideout, Well Being Trust

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