I wrote a long post on e-patients.net about my one day at Medicine 2.0 on Saturday. Here are a few highlights — people who focused on listening to patients and caregivers: “To learn listen well to impressions voiced by patients first” – Sally Okun of PatientsLikeMe closed her presentation with this poem.
patientslikeme
Peer-to-peer Healthcare: Crazy. Crazy. Crazy. Obvious.
Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize that knowledge to make it useful for as many people as possible. An idea whose time […]
PatientsLikeMe goes wide
PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing website was previously only available to patients with 22 chronic conditions (including ALS, Parkinson’s disease, HIV, depression, epilepsy, fibromyalgia, multiple sclerosis and organ […]
Healthcare Out Loud
Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising even myself with some of what […]
“They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy–Susannah Fox
Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D., last September: As you listen to Dr. Coombs’s chilling story about a man who lost his foot because nobody ever took his sock off to examine it, please review Jessie’s […]
President’s Cancer Panel: Input, Please–Susannah Fox
What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).
Recent Comments