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Susannah Fox

I help people navigate health and technology.

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Medicare

Lessons learned about hospice care

October 19, 2020 By Susannah Fox 39 Comments

Thick trunk reaches up to the sky, sunlight filters through leaves

A loved one recently went over the cancer waterfall and I dove in after him, keeping his head above water long enough to say goodbye to everyone. It was an intense four weeks of caregiving – two in the hospital and two at home, in hospice.  I am sharing one segment of our story to […]

Filed Under: e-patient stories, end of life Tagged With: caregivers, family, hospice, Medicare, peer-to-peer healthcare, Renee Berry

Blue Button’s North Star

August 23, 2018 By Susannah Fox Leave a Comment

Red Stop sign with stickers, so it reads: DON'T STOP BELIEVING

Blue Button is a Trojan horse for culture change in the American health care system. It places power in the hands of patients and whets the data appetites of millions of Americans and the companies who would like to serve them. If you’ve never heard of Blue Button, here’s a quick overview: The federal government […]

Filed Under: health data, medical records, policy issues, positive patterns Tagged With: Blue Button, FHIR, Hhs, Mark Scrimshire, Markle Foundation, Medicare, VA, veterans, White House

The White House Conference on Aging

July 12, 2015 By Susannah Fox 12 Comments

Lawn sign in front of the White House announcing the Conference on Aging July 13

The White House Conference on Aging only happens once every ten years — and it’s happening tomorrow. The program begins at 10 a.m. ET on Monday, July 13, and will be livestreamed: https://www.whitehouse.gov/live I’ll be on a panel in the late afternoon talking about technology and the future of aging, directly after Tim Brown and Barbara Beskind discuss […]

Filed Under: demographics, key people, medical records Tagged With: Blue Button, Hhs, home health care hacks, maker movement, Medicare, Rosalie Yerkes Figge, usability, White House, White House Conference on Aging

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Recent Comments

  • Susannah Fox on Rare Disease in the NYT: “Captivated is such a good description of how I felt, too. I read the essay once through quickly, then a…” Apr 25, 11:12
  • Anonymousity on Rare Disease in the NYT: “I was captivated by Amanda Hess’s story. I too dove right in in reading all the way through the article…” Apr 25, 09:24
  • Susannah Fox on Rare Disease in the NYT: “Thank you, Dave! Yes, I’ve been a fan of Hess’s writing for a long time and now, well, I’m a…” Apr 23, 22:00

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